I am frequently reffered to as lazy, or told that i just need to get some exercise. My family, after repeated attempts to help them understand my condition, does not get it! They cant see my illness so it is not real to them. I was diagnosed at 27 after a massive PE and 23 clots in my heart (at tricuspid valve) Now, after several open heart surgeries, having my right lung removed, and 3 miscarriages ( all between six and seven months) , and also having a greenfield filter "installed" I cant get them to understand why i just want to sleep or rest. I ever socialize outside of the home anymore....how do I make them understand?
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