Well this is a very very long story cut very short. I live in Spain and on Monday of this week travelled to Barcelona with my husband to have an appointment with Dr Richard Cervera – what a great man! He was kind, considerate and most of all listened to all my symptoms without making a judgement.
If I tell you that after my last stroke last September the idiot junior neurologist described me as have a bizarre pseudo spastic type walk and said that there was nothing organically wrong with me. When I replied how delighted I was with his diagnosis and asked when I could stop my anticoagulation medication he replied that I was an obstructive and difficult patient and sent me to see a psychiatrist saying that I had a Conversion Disorder. Since then nobody has taken any of my symptoms seriously. I have been told to take 2 paracetamol and not to keep bothering them!!!! Yes I know it's absolutely appalling!!!
HOWEVER...... there is good news because today, in Barcelona, I met with a Neurologist who too was kind, considerate and a real professional. After having extensive tests with him he has made a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy which has in turn given me Autonomic Dysfunction. Sadly, the damage done is irreversible for me and my heart has been badly affected too. However, I feel justified to stick at least 2 fingers in the air at all the junior inexperienced neurologists who have made my life hell for the last 2 years!
I also want to thank APSnotFab and MaryF for their continuing support. Without you two I’m not too sure if I would have had the strength to continue. A big hug and thanks to both you fantastic ladies, your support has been phenomenal.
Tomorrow I’m going home and can’t wait! I also have been given a recommendation from Dr Cervera to get in contact with a specialist he can recommend in my area. So here’s hoping and fingers crossed for a brighter future!!! Love to all from here InSpain xxx