After been told I was "depressive", "anxious" and almost crazy because of telling my doctors I had brain fog and concentration problems....at the end, I went to a psychiatrist.
My neurologist prescribed me Prozac!!! And me, as a stupid girl, started taking those horrible pills that made me sweat 24 hs. Of course, I left them, I wasn´t depressive!!!!!
Yesterday, I met my psychiatrist. I was 1 and 1/2 hr with her and She said that I AM NOT DEPRESSIVE AND MY ANXIETY was completely normal due to my health problems and doubts. She said that the only one that was crazy here was my Neuro. Because he should never prescribe me Prozac. I am a young girl and without depression.
She said that my concentration and brain fog problem was due to my brain thrombosis and APL. She had have some patients with my same problems after having a brain aneurysm or similar.
SHE INSISTED ON THE IDEA THAT MY PROBLEM HAS AN ORGANICAL CAUSE.
She said It isn´t necesary to come back to see her.
Today I feel great, like I have won a battle....looking forward to show the medical report to my other docs!!!
Written by
swirl
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Good for you, and I am so sorry you have had to go through this, as a seronegative Hughes Syndrome patient I understand only too well how undignified and unprofessional at times medical diagnosis can be, until you see the right person. Hopefully she will write some very good letters! I wish neurologists, beyond the few we hear good things about, could have some upgraded training and attitudes to this disease! Best wishes to you. Mary F x
As Mary said good for you hun sounds all so familiar except i was labelled by my GP and given prozac (threw them away after 2 days tho) not my neurologist but i did get the distinct impression my neurologist was not fully clued or believed in the work of Prof Hughes! sceptical doctors are a pain!! and harder still with APS we dont always have the evidence on scans or with blood results so our struggle is massive at times to be listened too!! and believed!!!.
So i am so pleased for you - well done dont let anyone make you doubt yourself - i did let that happen to me then had TIA's so now have a new GP and stronger attitude towards self belief.
Swirl I am so happy for you! You know that I have experienced the same treatment by neurologists here in Valencia! Never give up and keep smiling. When I feel a little better I will send you a message about my visit to Barcelona.
Thank you everybody for your support. All of you understand my situation and the tears I've cried after visitting some doctors... Once, I showed my doc a picture of my blue foot (I have livedo and acrocianosis) and said to me if I hit my foot or if it was painted!!!! Its so frustrating!!!!!
I will keep the report next to me everyday!!!
Kisses to everybody, I'll tell you about showing it to my docs
I give up with them trying tell me that its something I have imagined too, not got to the prozac stage, I seem to find if a doctor don't know they will throw pills at the problem instead of researching it.
I take a friend with me now who is a nurse, she does not let on who she is or her job, unless she thinks the doctor is wasting my time. She can speak for me too. One doctor did not even look at my notes before taking to me, thats when she stepped in. It feels like a circus sometimes.
Always take someone who sees you most often with you they can tell a doctor any changes they can see you and say if things are different to a month or a year ago.
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sounds all so familiar except i was labelled by my GP and given prozac (threw them away after 2 days tho) not my neurologist but i did get the distinct impression my neurologist was not fully clued or believed in the work of Prof Hughes! sceptical doctors are a pain!! and harder still with APS we dont always have the evidence on scans or with blood results so our struggle is massive at times to be listened too!! and believed!!!. 
You know that I have experienced the same treatment by neurologists here in Valencia! Never give up and keep smiling. When I feel a little better I will send you a message about my visit to Barcelona. 
A thousand questions
Why do I feel like I've got to have a major clot before they'll treat me?
Giving Blood
