This is my first blog, i'm not a blogger! (so bear with me!!) I stumbled on this site after finding out about Hughes Syndrome and what it is. I still really new to all this.
After having two T.I.A's (mini stroke) last year (which scared the hell out of me) i think i have been diagnosed with Hughes 3 days ago.
I Have to go back to Haematologist in 6 weeks for a definite diagnosis but neurologist thinks its almost certain.
I am 41, I have had a life time of Migraines , frequently lacked energy, I have had one miscarriage at 3 mths in 2006 and we also had a stillborn daughter at 7 mths pregnant in 2007. I was told i was lupus anticoagulant then and had to take aspirin with my next baby. Thankfully all went well. I think i now know why our daughter died before she was born, it still doesn't make it easier , but it helps a little as i have blamed myself since.
I feel like everything is fitting into place with regard to my symptoms and finally i have answers to my questions about my health and feel a bit more positive as i have been scared stiff since having my first T.I.A , as well as being constantly dizzy and having bad panic attacks (which is unusual for me and has made me panic even more !!).
I'm just petrified at the thought of having a stroke , my kids are still young, 13, 12 and 3. and they are my life and breath. i live for my kids, always been a stay at home mom.
I am now waiting to go on warfarin and really hope i can get a bit better.
Also , found out i have a small whole in heart and that's how the clot got to my brain , but they don't want to close it as they think warfarin will do the job . Has anyone else had any expreience with hughes and whole in heart?? I'd love to hear from you.
So glad i have found this site, i will be a regular visitor from now on .