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Hughes Syndrome APS Forum

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e-petition to get recognition for Hughes Syndrome

leanne1981 profile image
16 Replies

Please take a moment to sign this e petition, lets make some big changes to the way Hughes is look at in the benefts system, which would lead to other systems such as education and employment. I'm sure many of us have been through the trials and frustrations of going for ATOS medicals or spending hours filling in DLA forms just to be refused and have to go through the stressful appeals process. Its an unfair system and needs reforming.

epetitions.direct.gov.uk/pe...

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leanne1981 profile image
leanne1981
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16 Replies
MaryF profile image
MaryFAdministrator

Good on you! Mary F x

leanne1981 profile image
leanne1981

thank you, please circulate as much as poss, we have a year to get 100,000 people to sign and get it into Parliament x

taffydaffy profile image
taffydaffy

Hi

Just sighned it ok I will get other friends and family to do the same well done to you x

leanne1981 profile image
leanne1981

Thanks G! I've sent it round mum, dad and hubbys work and hubbys online radio station. Its on the APS pages on Facebook and on my Twitter so people should be able to find it easily. Just sending round the university I go to and local NAS too. We'll win this fight together, we just need to be persistant x

jessielou profile image
jessielou

Signed hon and will pass it round.

Take care gentle hugs love Sheena xxxx :-) :-) :-)

leanne1981 profile image
leanne1981

I have been informed that the link doesn't always work. If this happens, just put Hughes into the search bar at the top, its the only petition on the subject

Angelpaws profile image
Angelpaws

Well done, Leanne. I've signed and am about to forward it to all my friends and relatives. Fingers crossed, everyone! Larraine x

leanne1981 profile image
leanne1981

Thanks a lot, please keep it going. 100,000 signatures in a year requires over 275 signatures a day and that is going to be a hard target that can only be attained by people forwarding to friends and family or putting on their facebook, twitter, other social networks or forums for lupus/hughes/etc xx

siveinvan profile image
siveinvan

Fantastic, Leanne, unfortunately it only allows UK residents. I tried. :(

cami profile image
cami

No it does not, sorry, but I am in France and it let me!!!!

leanne1981 profile image
leanne1981

Really? Thats great, maybe it extends to EU x

Suzypawz profile image
Suzypawz

Signed it hun, hope this helps, I shall put it forward for friends & family too, it is very important to us all for it to be recognised as a disability, well done :) xx

sweett profile image
sweett

signed,,,,, its about time someone sits up and takes notice of us,,,, when i tell people i have Hughes syndrome they just look at me confused,,, goodluck xx

leanne1981 profile image
leanne1981

Exactly! We're on 117 so slowly getting momentum xx

leanne1981 profile image
leanne1981

Well now on 167 xx

leanne1981 profile image
leanne1981

The petition was retweeted by Dr. Khailash Chand OBE, Frankie Boyle, Victoria Lambert (a journalist who has APS) and a few other groups. Very grateful to them for taking the time to support

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