I have had Hughes for 12 years. and self manage on warfarin, usually between 10 and 12 mg, my INR is set at 4-4.5 as I have clotted on warfarin when my levels drop to 2 ish.
I self manage with a coaguchek XS and If my level have drop to below 2, so I self administer Tinzparin for 3 day, this usual works and boasts my level back up,
But this time it has not worked, I saw my haematologist last week and he put my warfarin up to 15mg and had me do 3 day on 3 days off on tinzaparin as well.
I have been feeling really unwell, tired and not with it, my husband calls it pudding brain. Yesterday I went for a check with the blood nurse who I see at our GP’s and my INR was 1.2… she grabbed the doctor, and everyone started to make calls,
The GP spoke to the haematologist and they have taken me of my warfarin.. which I have been on for 12 years, and just have me on Tinzparin injections every day, I a booked for a MRI scan on Monday.
My question is: Has anyone else had a reaction like this to warfarin and if so what happened, when I saw my haematologist last week he indicated that he might change the warfarin to another new drug, I can’t remember what it was called, so if anyone else out there in the UK is on a different anticoagulant I would love to hear from you.
Sally SC, Warwickshire