Just read some case studies, and its scary how many symptoms I have....

[Lolly83]

I've had to stop reading because I'm getting disorientated.

The spatial awareness thing was amazing trying to explain what it's like is hard for me, I had it severely over the weekend a long with a migraine seeing stars. Not knowing where my hands were especially my right in relation to everywhere else. My little finger still feels a little cold and numb. I've kept going back with these symptoms and although he's sending me for bloods I can tell he's skeptical. The brain fog is what I have today words are really hard to find. My husband came back from work and asked what had come in the post and what had come in a big package envelope, I looked and looked at it but I couldn't think literally went blank and that's what happens more lately. I'm also in a daze today my vision is making me feel liked I've pulled an all nighter.

My dr did mention my liver results were 34 so he said 1 over so he's not checking it again as he said its probably an error.

[Manofmendip]

Lolly

Please make sure that they do all the recommended blood tests as described on the HSF website and also insist that you are referred to an APS experienced consultant, again details from HSF about ones in your area.

What you describe is so similar to my symptoms, before I was diagnosed.

Dave x

[Lolly83]

I took a list of the tests but he couldn't find one of them, I'm worried if aCL comes back negative whether he'll give me a referral.

[Suzypawz]

Hopefully you will get the answers your looking for.

It is horrid when you feel you know theres something wrong but arnt getting the proof & obviously its important in some cases like Hughes to get diagnosed quickly so to begin treatment....

At least you have been sent to be tested so lets us know how that goes.....

Yes the symptoms you describe does sound familiar, I have a post which can be found on my profile called symptoms olympics....that is very interesting? But maybe wait till you get results first, hope all will be ok, Sue x

[MaryF Administrator]

Hi there, all the tests are clearly laid out on our HSF website, please let us know if you need that specific page sent to you, so you can forward it to his secretary's email addressed addressed for his attention, you may have to push for the referral, this is not uncommon, please do not lose heart this has happened to the best of us on here, and is really very common. Keep calm and carry on with it etc. Also very important that you send him the list of APS approved specialists in your area otherwise he may send you to somebody with no knowledge which will not help your case. Mary F x

[BTR1963]

I was recently diagnosed with APS and am amazed that the symptoms I have experienced for years are not the figment of my imagination. Apart from the clots I have memory blocks, tingling in my hands and feet, joint pain and at times fatigue. It's good to know I'm not alone!