I was diagnosed almost 8 years ago when I lost my daughter in the 20th week of pregnancy, although maybe should have been diagnosed after contraceptive pill caused dvt in 1993 or miscarriage at 13 weeks in 1995.
I now see a consultant at st mary's in london once a year (3mins maximum - lose weight, stop smoking and sometimes but not always a blood test). They don't seem interested in telling me whether any symptoms I have such as leg pains when walking more than a few hundred yards or transient but excrucuiating joint pains could be related. They didn't even suggest my history of migraine could be related. I asked them if I should take aspirin as a precaution and the response was 'it can't hurt but it's up to you'. Imagine my surprise when my migraines almost totally disappeared once I started the aspirin.
Last year they told me that they only test me blood to see if I still have antiphospholipid or if it has gone. I had never heard of it going away once diagnosed before - has anyone else?
Today I received a rejection from a life insurance company stating antiphospholipid syndrome as the reason they wouldn't insure me Has anyone else had a problem?