I AM ACTIVE DUTY ARMY RECENTLY DIAGNOISED WITH APS.DUE TO ME STANDING ON MY HEAD DEMANDING BLOOD TEST DUE TO DVT AND COUPLE MISCARRIAGES AND

[MALINGER1]

OTHER SYMPTOMS.NOW I AM HAVING STROKE LIKE SYMPTOMS WEAKNESS AND WHEN THE DOCTORS DO NOT SEE ANYTHING ON A CT OR MRI THEY THINK I AM MALINGERING.WHAT IS GOING ON ?HAS ANYONE SUFFERED ANYTHING LIKE THIS NEED SOME INFO.THANKS

[77tiger05]

First, where do you live? I live in USA and find a lot of doctors who can help. Being in the army makes me wonder why they wouldn't give you all the tests they could. I had 5 clots in my leg and lost it after gas gangrene set in. My stroke was a few weeks later and I lost vision in my right eye. My doctors were testing me for everything under the sun. They couldn't find anything either but one of the resident doctors on my case decided she wasn't going to give up on me and would spend nights in my room looking up everything she could on the computer. This was in 1995 and she was the one who found the answers. So don't give up, ever!!!!!

Good luck to you.

[MALINGER1 in reply to 77tiger05]

Good morning from Fort Eustis Va which is in Newport News VA about 30 min from Norfolk Va and 3hrs south of Washington DC.But the mri or cat scan with and without contrast shows no stroke but I have right side weakness and speech impairment.Thanks for helping me I think Iam losing my mind

[MaryF Administrator in reply to MALINGER1]

If you do not get any more answers, do ask another question, highlighting your area in USA... and those on here from USA will log on and come up with some names... also try this organization which I hear very good things about!

americanaps.org/

Keep in touch and best wishes, you are in good company on here! Mary F x

[Manofmendip in reply to MALINGER1]

Hi

Also try:

apsfa.org/

Best wishes.

Dave

[MaryF Administrator]

If you have had this diagnosis it is vital that you seem somebody either a rheumatologist or a hematologist or any specialist with a working knowledge of this condition. Can you tell me where you are. So I can try and track down some support for you, in terms of names attached to medical papers or other sufferers in your particular country, or here! Let me know. Mary F

[77tiger05]

I live in Burlington, NC so not far from you. Thanks for feedback. No you are not losing your mind, just do a MryF says and see another doctor. Good luck to you and will help if I can.

[Nccarolina in reply to 77tiger05]

Hi Burlington, I think in another post, you were asking about a doctor at Duke. Dr. Allen that was mentioned is not taking any new patients. There is another doctorthat has interest in aps, but you need a referral. However, there is a study for aps under the direction of Dr. Thomas Oretel. I emailed them last night and today received 2 emails & a phone call. I looked him up & he has done a lot of work with aps.

[77tiger05]

I wasn't one who was looking for doc at Duke but was trying to find the one they wanted. Not enought information. But thanks for the thought!!

Good luck once again!!!

[Carole-J]

I have APS and several other autoimmune problems. I have been told originally by Proffessor Hughes that I was having TIA's. Other doctors now think that I am having an unusual form of migraine. I have had a few MRI's and nothing shows but I lose my speech, my face drops on the left side and I also lose the use of my left arm and leg. I am now on 16 tablets a day and still having these "turns" I think there are quite a few of us having these problems and the doctors need to be thinking outside the box. Keep well regards Carole

[MALINGER1 in reply to Carole-J]

Where are you?I am going to my neuro doc in Bethesda but I need to know if Duke is the best near me with APS.I am getting more info on finding things myself I have no faith in any doctor I see now because what you just explained is me. But they look as if I am lying or new behavorial health.I have a hatred which is really anger with these doctors who want to add 1+1 and anything else you are lying or need to see a shrink .I am sick memory leaving ,weak ,vision getting worst and hearing about gone at 43yrs old.I hate pity parties but I also hate those that don't want to understand the old me.And hate is a strong word but I am mad!!!!!!!!!