New Fibro research: Hey everyone get on... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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New Fibro research

DawnS profile image
6 Replies

Hey everyone get on facebook and go to the fibro page and look at the new research. They have found fibro patients have a decreased blood flow to the frontal lobe which is were pain and memoryis processed. If thats the case then fibro is a milder form of hughes. Hughes effect our entire brain were fibro only effects one area.

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DawnS profile image
DawnS
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6 Replies
Storky profile image
Storky

Hughes and Fibro are two entirely different conditions. This research pointing to decreased blood flow does not indicate an increased clotting risk which is what happens with APS.

paddyandlin profile image
paddyandlin

Hi Dawn,

thanks for sharing the information, i think it is always good to keep up with what is going on but Fibro altho gives some overlapping symptoms it is a very diffrent dieses and the lower blood flow is not nessecarilyin the main areas for clots , so please do keep finding info all this helps the memebership

Paddy

DawnS profile image
DawnS

So everyone with hughes dont have a decrease in ovet all blood flow? I have been tested and I know I do I just assumed all hughes patients did.

Fibromyalgia is one of those 'catch-all' terms literally meaning muscle pain. It doesn't mean there isn't anything wrong with you, but there isn't yet a firm diagnosis of anything else - it could be that patients have another yet undiscovered condition.

There could possibly be some cross-over with other autoimmune diseases and it would be a good idea for people with a fibromyalgia diagnosis to be tested for antiphospholipid antibodies. The aPL may not be the full syndrome but something may be triggering them.

So much research is needed in both areas - I won't even start on the links with MS ...

jessielou profile image
jessielou

Hi

Interesting information hon, always good to discover something new. I have Aps, Lupus and fibromyalgia amongst other things. So many cross-overs on symptoms.

Lynn I sincerely hope we all live to see the pain out. The docs are getting closer everyday, roll-on!!!!!

Take care love n gentle hugs Sheena xxxxxxxxxx :-) :-) :-)

DawnS profile image
DawnS

Thank you all for responding! Its really nice have you all and not deeling so alone in this as I have felt now for7 years:-)

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