New to the APS game: Hey, I'm pretty... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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New to the APS game

Zombiegrl559 profile image
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Hey, I'm pretty new to all this. I had a large PE 6 years ago thought to be attributed to birth control, was told all genetic testing after was fine. Hematology didn't want to do precautionary asprin daily after released from care. Fast forward 3 years ago, I had another (very small) blood clot, this time it went to my heart and had to have an angio w/stint and was on Brilinta for a few years. Genetic testing now says I have APS but possibly not lupus. History of Hashimotos, Me/CFS, IBD, Fibromyalgia though. They deemed Warfarin wasn't suitable for me due to the interaction with several key meds I'm on. Have prescribed daily Lovenox injections. I'm having a terrible time finding a lot of literature about this or any support groups, but the last few months have been pretty anxiety riddled and scary. Would love some advice from fellow sufferers. Because injections daily with a slight needle phobia isn't helping.

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