Hello. I'm not sure if this is the right place for me. I have been dealing with chronic fatigue issues since 2006. Fatigue, brain fog, muscle and joint pain, etc. It started as pain, but has progressed and I am now on medical leave.
August 4th had a visit with the rheumatologist who did a complete work up looking for lupus or RA. I tested positive for APS and he told me to take a baby aspirin. He also told me I have "fibromyalgia" which to me isn't a diagnosis but rather a collection of symptoms.
Anyway. Soon after diagnosis I went online and learned a little about APS. I found the site in the UK which described "mild" symptoms that fit me to a "T". I have never had a major thromboembolic event. I've never been pregnant and don't plan to be.
I started taking 325mg aspirin (just to jump start things) and within a few days my headaches were gone and my thinking felt clear. After a week I decreased to the recommended 81mg. I then relapsed. Increased back to 325 last Friday and still feel like garbage.
I have had THE most thorough work up over the years. Neuro, cardio, GI, food intolerance, stool testing, micronutrient testing, tons of specialty labs, genetic screens, viral, rheumatology, you name it.
I guess my question is...is there anybody else here with a similar story?