I'm 23 years old and I was diagnosed with APS about 3 years ago. I had the testing done initially because my mother has it and I was looking into birth control so I had to get tested for it first so it wouldn't induce clotting if I did.
This is where it gets interesting,
My mother was diagnosed years ago after having me actually and i have 3 younger half siblings so I've watched her give herself shots and she's had many miscarriages 3 of them being very late in development. Since nobody knows much about APS even now let alone 20 years ago she was told APS only effects pregnancy and when you're pregnant but nothing else. She's told me this when I was younger, obviously being my mother and that's what she was told I believed her without second guessing it with all of her other weird issues going on ( my family just thinks she's a hypochondriac, same with me)
Now this is what I believed this entire time until 2 days ago when someone I ended up finding a website about APS and after realizing what it was saying I was nearly in tears because I've found the answer for both me and my mothers symtoms.
I was in the process of figuring out if I had MS or not seeing a neurologist and everything because I have nearly every MS symtoms plus more. I've have also been diagnosed with narcolepsy a year ago.
Basically, now I'm trying to figure out what I should do. I have never been able to keep a job, I've always ended up leaving due to my unpredictable symtoms and I didn't want to put employers through that because I never know if I will make it to work the next day until that very morning. This is all EXTREMELY frustrating to me, especially when my doctor never told me anything about this and insisted I get tested for MS when all along it's something she already knew I had!
I guess I don't really know what I'm asking I just need some advise because this is taking over my life and ruining relationships. Which is causing a huge amount of stress.