On Friday I was told at my 8 week scan that the baby had stopped growing at 5 weeks and there was no heartbeat. I have to go back for a confirmation scan next Friday but this is my 5th loss now so I know already from experience there's no hope. I started myself on aspirin and Fragmin after the positive test but it didn't seem to help sadly. They don't start you on it here until you get a viable scan at 7/8 weeks which seems ridiculous. I'm now in the awful limbo period of waiting for scan then deciding what to do although because of Covid I'm limited. They've said to stop my injections now and that they'll start me on them again for 6 weeks after I've stopped bleeding after miscarrying but last time the specialist said to keep on them all the way through so I'm very confused! Surely you're more at risk of clotting when you're bleeding? What have others been told in the same situation please?
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JemJJ
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What a terrible place to be. Absolutely devastating, as well as really frightening when you are given information that is contradictory.
Let’s see how we can help you- with the understanding that our main goal will be to support you along the way to getting you to the best medical expertise we can- and with the warmest possible virtual love we can- knowing a large percent of us have been to one extent or another in miscarriage situations due to APS.
I which country do you live? That’s important to know when trying to help you find APS specialty care.
Many women do go on to have successful pregnancies with top APS specialty consultant OBGYN “teams.”
Thank you! I'm in South Wales in the UK. There seems to be so many different opinions on how to treat APS here but where I am they just don't understand it I'm going to.ask to be referred to the clinic in London next I think
I am so sad reading your post. There are no words I know that can comfort you. The most important thing now is for you to receive the very best treatment. Yes, you can bleed and pass blood clots at the same time.
If you are in the UK, St Thomas' Hospital has a special APS pregnancy unit where your doctor can get advice.
Our role here, as Kelly wrote, is to support you - so please feel you can come here to talk.
I'm so so sorry you are going through this, it's so unfair, I'm hoping you have a good support bubble around you.I'm confused too, such conflicting information and having to wait...
I can't answer your question medically as I have no knowledge but my experiences say, listen to your gut instinct, if you are happy doing what you did last time, carry on, at least until you can talk through with a doctor properly.
I really wish you well and will be thinking of you as you go through this terrible trauma xx
I am sorry to hear your sad news, I hope you are drawing those you live with close to you, and also reaching out to friends and family on the phone, when you feel able to, it must be very difficult during such stressful times to make sense of what you are supposed to do.
I agree wholeheartedly with the answers you have already been given. It is absolutely vital that you have the care and support of a good Obstetric/APS team, I know some of our ladies on here have also received if necessary, low dose steroids and also progesterone in addition to fragmin and Aspirin, it is up to any team to evaluate you properly on your past obstetric history. Please take time to recover and do check in with us whenever you feel like it: Please let us know about your location. MaryF
I can imagine they would say that, please stay in close contact with your medical care, this is a very difficult time for you, as administrators and fellow members, we are here for you. Your safety and well being is very important! Big hugs. MaryF
I have no medical knowledge and my losses were before this awful disease was known about but please know that on this site you will be wrapped in a blanket of love and care. If you ever want to talk I am always here for you or anyone who needs me. I hope you get some decent medical advise soon. I will be thinking of you
I'm really sorry for your losses and can totally empathise with you being through the same.
I was told my body had to preco ditioned prepregnancy.
I was made to take clexane and especially folic acid as well hydroxycloryquine.
I took this well in advance getting pregnant and my sticky bean finally stuck.
I was seen at St Thomas they are really very good with pregnancy there and adding to these treatments all the time. If you can get in to see them in the pregnancy clinic which is especially to prepare you for pregnancy.
I am so terribly sorry about your sad news. I lost a little boy at 25 weeks when i lived in Germany and akthough my Lupus was diagnosed they hadn’t checked for APS which was relatively new in 1991.I read about St Thomas’ Lupus pregnancy clinic in a magazine, so it took a while but we got posted back to the UK and referred to ST Thomas’. Two years after losing our baby boy we had Jonathan born at 28 weeks and 6 days weighing 1lb 10oz. Our miracle is 27 years old now, its all down to the work done by St Thomas’ hospital.
They found i had APS when i had a PE at 10 weeks and they treated me with Fragmin.
Again i am so sorry for what you are going through, but don’t give up hope.
Thank you, I'm so sorry for your loss but I'm glad you had success through St.Thomas. I'm going to ask my GP to refer me today, I'm waiting for a call back so fingers crossed!
Update- my GP says she'll ask to refer me up St.Thomas but because I'm in Wales it might not be possible on the NHS but I might be able to get referred privately.
Honestly I feel like APS people takes ages for our miscarriages to pass ..it feels like a lifetime. Just take the time to heal physically and emotionally. Honestly most of us here have been there and feel for you xxx
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I'm going to.ask to be referred to the clinic in London next I think
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