Joints and “elastics”

[murphylotte]

I have aps and have and infection so my inr is very low 2,3 at the minute.

I have on top of this hurt my hand. I was reaching out after wraping paper on my top cubbard and my “elastic” in my hand poped 😳😳

I am in pain, my gp Said nothing has rubtured 🙏🙏

But i cant streach my fingers or close them.

Has anyone tryed this???

[HollyHeski Administrator]

Hi, your photo looks like a lot of bruising?Has your GP examined and checked nothing ruptured?

If it was me I would judge how much pain, little movement etc to whether a trip to A & E is needed?

Either way, if rest doesn't help, a trip is still needed.

Are you on heparin injections while your INR is low?

I hope your infection improves and you start feeling better soon.

[murphylotte in reply to HollyHeski]

My gp checked my hand monday. Im on fragmin injections yes.

[Lure2 in reply to murphylotte]

Try to keep your INR at the therapeutic level. That has to do with the Warfarin only as the Fragminshots just protect you from clots when the INR is too low. Try to get the INR up and if needed take more tests as you have also had an infection and that may get the INR erretic up or down. You never know which.

[murphylotte in reply to Lure2]

Im working on my inr 🙏😅

[MaryF Administrator]

I would get a second opinion, if your doctor is not quite listening to you. MaryF

[murphylotte in reply to MaryF]

My gp is very good 🙏

[KellyInTexas Administrator]

The swelling looks like it’s restricting blood flow to your fingers? Or is this just your raynauds/ a little pooling/ livedo?

Also- you might ask to be checked to see how your collagen seems to be in your body.

It’s not an immediate need- only when you can safely see your rheumatologist.

Also- look at the remote possibility of vascular Ehlers Danlos syndrome.

It’s one variation of ED.

[murphylotte in reply to KellyInTexas]

I think its my raynauds and the swelling make my hand look white when i strech.

What can collagen do?

Thank you for reply KellyInTexas 🤗

[murphylotte]

KellyInTexas

I was Reading about ED syndrom. I have had sooo much pain and problem with my shoulders, poping and hurting 😳🥺🥺

Nobody has told me about this 😱

I will talk to my gp 🙏

[Lure2 in reply to murphylotte]

I know you live in Denmark. I also know you had found a Specialist of some kind who listened to you some years ago. The problem for us is that we need a Specialist of autoimmun illnesses all the time. GPs are not specialized on these difficult illnesses that are very difficult to diagnose as they go hand in hand and have so many similar symptoms. Of course it is important that they are helpful and try to help.

We may even get false diagnoses and unnecessary drugs because they are so difficult to separate from eachother by a Doctor not knowledable enough.

[MaryF Administrator in reply to murphylotte]

I think it is good to get checked out for this, this has started happening really badly to one of my children... we will be waiting also for an evaluation. MaryF