Anti inflammatory : I know we can’t... - Hughes Syndrome -...

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Anti inflammatory

amy1808
amy1808

I know we can’t have anti inflammatory when on warfarin . Just want to know what you all use . I have a trapped nerve in my neck and it’s soo painful , pain killers aren’t helping at all

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KellyInTexas
KellyInTexasAdministrator

For short course / short term flare you can use a short course of steroids if your hematologist/ rheumatologist say it’s ok. Be aware it will raise the inr.

( more important is to address the root of problem.)

amy1808
amy1808 in reply to KellyInTexas

Kelly my inr is up to 5.4 this morning from the pain killers & trying to speak to your GP is impossible 😡.

KellyInTexas
KellyInTexasAdministrator in reply to amy1808

I’d rather, ( me personally) have short term anti inflammatory meds than pain killers. You’d need a doctor for that anyway-

MaryF
MaryFAdministrator

I find with pain like that, that my magnesium sleep lotion works quite well, but do check with your GP, as I am not on Warfarin, it certainly seems to make me very relaxed at night, and probably has a knock on effect on pain to some extent. MaryF

KelleyH
KelleyH in reply to MaryF

Hi Mary... Tell me more about this magnesium lotion? I have recently started taking magnesium again, and of course, Epsom salts e/ magnesium, but I've been warned of taking it orally, so I'd be interested in a lotion with magnesium but never heard of that... Wondering where I might find it. I'll have to research. Thx and Happy Monday!

MaryF
MaryFAdministrator in reply to KelleyH

Please check in with your GP and or specialist regarding this, I use Better You Magnesium Sleep Lotion, works well for me, I do also take a small amount orally, but I find this works so well, that I cut down the oral dose, did check in with the GP even though I am not on Warfarin. MaryF

Why warned off it orally ? Tnx

i GO EVERY 2 MONTHS FOR SHOTS OF LIDOCAIN IN THE LEFT TRAPEZIUMS - THE MUSCLES ALSO GET KNOTTED FROM NECK DOWN TO SHOULDER BLADE AREA.THAT IS THE ONLY THING I GET RELIEF from .

I use tart cherry juice. It can increase inr but not much. Ask your dr. I have gotten so much relief from drinking 8 oz a day. I have been drinking it for 3 months now daily. I am on warfarin. Please ask your dr and research it. I am consistent with it and I eat lots of broccoli And greens-so maybe it balances it all out. Whenever I start a new food or medication, I always watch my inr closer.

Take care

I would use like deep heat cream or maybe even cocodomol ? I get cocodomol because of two dvts I had that made my leg swell up but that's about the only painkillers I'm allowed

Have you tried topical anti inflammatory? But if this is a trapped nerve, I suggest physical therapy might help.

I take codeine phosphate for pain along with paracetamol. That really helps. I take phenindione as I am allergic to warfarin and it doesn’t seem to affect my inr.

I’ve been on warfarin for over 20 years and I only learnt the other day from the warfarin nurses that topical anti inflammatory can effect your INR it’s not something I’ve personally used.

I have a terrible prob with painkillers I can’t take paracetamol or codeine it makes me too sick.

I’m a naughty girl and do take ibuprofen every now and then, I have nothing else to take that doesn’t make me feel ill. Given the rest of the ‘stuff’ I have to take I’m not sure it makes much difference.

You need to try and speak to your GP see if you can get some physio and painkillers.

A trapped nerve in the neck can be ruddy painful.

J

amy1808
amy1808 in reply to judes

It is ruddy painful 😖

Acupuncture always works for me, especially nerve pain.

Find a recommended chiropractor , they can fix a trapped nerve unless permanently damaged . If so , A physiotherapist will give you exercises movements to strengthen supporting muscles to the damaged part .

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