Hi! I first wanted to thank everyone on this forum, for educating me on APS. I had two positive blood tests - B2Gp1 IgM - seven years ago and I was not medicated. My other APS antibodies were WNL. This June - I had an unexpected stroke - which is odd at age 51 with no heart issues. I was given an APS diagnosis because the stroke initially was attributed to a clotting issue. I was retested for all the APS antibodies and again, my only positive was B2Gp1 IgM.
Then, it was discovered that I had a rare diagnosis of carotid web - which was causing 50% stenosis in my carotid artery. The CT image they took when they removed the clot after the stroke showed a clot sitting on the web - and in the follow up CT a month later it was gone. I was on high dose aspirin. The doctors thought the carotid web likely caused the stroke. I had a surgery - last week - to place a stent in my carotid artery and push the carotid web out of the way - as it is associated with recurrent strokes. I am on Plavix and aspirin for 3 months after the surgery, and then on baby aspirin daily for life because of the stent.
Where does this put me in terms of APS diagnosis? They have no way of knowing if a clotting disorder contributed to my stroke. My rheumotologist and hemotologist said to take high dose aspirin after
The stroke . They aren’t APS specialists.
They did an iNR test pre surgery - I was taking high dose aspirin and Plavix for 4 days -and my INR was 1 with a Prothombin Time of 13.2 seconds. I know nothing about INR results and hoping someone can offer some guidance. I am hoping to go to NY to see a specialist when it’s safer to fly - who knows when that will be. Any help, experience or knowledge is appreciated. 😀