Why isn't there a LISTGOOD of doctors... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Why isn't there a LISTGOOD of doctors in London or what ever country you guys are in....

hasmoxie2 profile image
13 Replies

Here in the states we have a list of doctors that WE gave the names to so we KNOW the docs know about APS.

For those of you who have doctors who know about Hughs/APS can you list your area and give your doctor? It's like a friend giving a friend their doctors name - or two. Even the doctors who DON'T know about APS should be listed so somebody else doesn't go to them and maybe from the doctors bad advice - has a stroke becauce the doctor did nothing.

We - you - will just be helping each other out.

debi in Fl w APS

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hasmoxie2 profile image
hasmoxie2
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13 Replies
rallcard profile image
rallcard

ok, i'll start the ball rolling....

Dr Dr Sarah Lewis, haematology. Neville hall hospital. Abergavenny. Monmnouthshire, South Wales.

Dr. Andrea Gaito MD Rhematologist Internal Medicine Basking Ridge New Jersey US

908-766-0339

MaryF profile image
MaryFAdministrator

Hi there, we are currently in the middle of building a data base, here in the UK, - recently a post on here from Yvonne requesting details of good medical contacts. Mary F x

Calico profile image
Calico

Hi hasmoxie2, where is the kist of u.s. Doctors for aps?

miamigirl profile image
miamigirl

Hi Debi.

I am also in Florida and was not able to find a doctor until someone from this sight was kind and helpful to have given me a couple of names.

Where can I find the list you refer to?

Thanks

hasmoxie2 profile image
hasmoxie2 in reply tomiamigirl

hi! what part of Florida are you in? Read below for the APS web site for U.S.

debi in fl w APS

jean48 profile image
jean48

Dr. Kevin McKown, Rheumatologist, Madison, Wisconsin

pinkpink profile image
pinkpink

Hi,

I am in the Northern part of California...does anyone know of a Dr. in this area? Thanks in advance!

Salty profile image
Salty

To find the USA list, go to apsfa.org. On the far left in the red, you will see "find a doctor." These are all physicians that PATIENTS have entered.

hasmoxie2 profile image
hasmoxie2 in reply toSalty

YES - this is where to find a list of doctors that others have given. Also if you live here in the states - you can ask for refs of doc in a certain area. Another site for info that ALL should join .

debi in Fl w APS

pinkpink profile image
pinkpink

thank you!

YvonneW profile image
YvonneW

Thanks for all the information and support. I am indeed in the process of compiling a database of APS specialists in the UK, as recommended by patients. Unfortunately, we are not in a position to extend this beyond the UK yet, but may do sometime in the future.

Please keep letting me know the names of UK specialists so they can be added and once they are in agreement, we can release their names on the new website.

hasmoxie2 profile image
hasmoxie2

WOW! I've been ill and haven't checked my email! Nice response - even though it is suppose to read " a list of GOOD DOCTORS.." YES we need to help each other by giving a name or two! That doen't mean WE might like that doc - but it's a start!

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