I can't get my right leg to "wake up". - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

I can't get my right leg to "wake up".

gulfbreeze profile image
5 Replies

I in the US and been diagnosed for several years. Am on warfarin and plaquinil. Right now my right leg has been "asleep" for 24hours. Has good pedal pulse and only slightly cooler than left. Should I be concerned?

Written by
gulfbreeze profile image
gulfbreeze
To view profiles and participate in discussions please or .
Read more about...
5 Replies
CanaryDiamond10 profile image
CanaryDiamond10

Welcome Gulfbreeze: I live in Illinois. If any abnormality continued over 12 hours, such as your right leg falling asleep, I would be concerned enough to call my doctor's nurse and ask if she thought there is reason for concern. Much would depend on the last time you were seen, how often duration of the symptom extends to 24 hours or more, if it is constant or intermitent and what other symptoms it accompanies. I have had my hand and foot fall asleep and get cooler, all week except it only lasts 20 minutes or so, but several times an evening. I happened to have an appt. today with my rheumatologist and she was not overly concerned. She checked pulses all over the place, but still I surmized she was not overly concerned or she would have stated so. I don't know your medical history and therein lies room for concern in any individual.

We can all support each other, but few of us have the medical training or expertise to answer a medical question. The best we can do is offer each other is emotional support, fresh ideas, a shoulder to cry on, remedies we've tried, similar cases and understanding. We can trade all sorts of information. We can gain strength and courage from each other. But none of us are MD's as far as I know. So what we share are experiences from the heart.

A little call can't hurt. If you were concerned enough to query the forum, you're concerned enough to obtain an opinion from your MD's nurse via phone call, particularly if it continues in the morning. Let the forum know what they said. I'd be curious to see if they answered similar to my MD.

Best of luck.

CanaryDiamond10

jetjetjet profile image
jetjetjet

Hi gulf - have you had DVT in the past-- i think i would be concerned anyways- it could be a pinched nerve--- but to be on the safe side i would have it checked ------------------ jet----------------- up here in New Hamphire-----------------------------

MaryF profile image
MaryFAdministrator

Hello there, this seems rather a long time to me for it to be feeling like this, I think if I were you, I would be getting a check up with the right people, ie, whoever you know who monitors your APS etc. Hope you feel better soon. Mary F x

daisy11 profile image
daisy11

Suffered from dead leg since Sat until yesterday, went to GP and he did a D-dimer test save me going to the hospital - came back negative. I put it down to all of the conditions I have along with APS - peripheral neuropathy, Lupus, etc etc, despite burning sensation, it seems to have returned to normal.

GinaD profile image
GinaD

I'm glad it's not a clot. If you still crave a diagnosis you might chart the pain. Is it worse with certain movements ? At certain temperatures? time of day? any difference when the weather changes?

Not what you're looking for?

You may also like...

Does anyone wake up feeling like they are suffocating? Some mornings, I find myself struggling to breathe while I'm asleep,

dreaming that I'm not breathing right and waking up off and on to breathe better again, but when I...
iwantsimple profile image

When will my leg get better?

I've had quite a traumatic time and my story could take a while so I'll do a shortened version- I...
Avydoo profile image

how to get my doctor to make referal to haemotologist

Hi I wondered if anyone could help, am brand new to this forum and wondered if anyone had any good...

Starting to get a bit fed up now!

Heya every people's, After being diagnosed in November 2013 with dvt a string of blood tests later...
bevjane74 profile image

re: Hot pulling sensation on my right leg around the knee area

Hi there, Has anyone ever had the feeling that one of the veins is being pulled and is on fire?
tAigers profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.