Don’t know whether it is my APS or something else . I am well coagulated. My head is dizzy , keep going weak in different places in my body , just feel really in well .
Went back to my Dr yesterday , had a good check up and he isn’t sure what is wrong .said to wait until my ECG done and bloods on the 9th . I don’t feel as though it is heart related . I feel like I did before I started on Amitriptyline . Strange thing is this afternoon I will probably be ok. Just the mornings that are really bad . Don’t know how I am Managing to work 😪
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amy1808
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I have forgotten if you are Lupus Anticoagulant? If not, try to selftest and do a couple of doubletests to see if there is any difference between the two bloodtests (when you have started selftesting).
You should test often to be sure that you keep the INR high enough and stable also.
As you also are Lupus Anticoagulant and selftest every second day, I wonder if the INR taken at the hospital lab in your vein and the INR taken by the Coaguchek-machine in the finger is about the same value?
My differ quite a bit every time so I always have to withdraw perhaps 1.0 from the machine-testno.
It is important that the DIFFERENCE IS THE SAME otherwise you can not rely on the result.
I am sorry reading you are feeling so poorly and struggling with work. It is this "in between" stage that is very difficult and frustrating: not knowing what is wrong. What dose of amitriptyline are you taking?
If you are struggling, surely your GP could sign you off work?
You have another week before the ECG & blood tests? Why the wait for blood tests?
To be honest even though I am struggling at work at least I have people around me . If I was at home I would be alone if anything happened and it takes my mind off it . I don’t get paid when off work either 🙁
Talk about brain fog , I have just read a text out to my daughter from my phone !!! then I walked into the lounge looking for my phone and said I think I have left my phone at work 🙈😱, OMG talk about Dementia I’m only 49
I know I always go on about this, but have you done any decent thyroid tests lately? Just to rule out any influence from that in the mix!!! I presume they have done things like CRP and ESR and checked for inflammation, infections and things?
I’m at my hematologist office now- waiting. Did you read my response to you about an hour and a half ago from your last post? Maybe yesterday? Was on Rotirro 1 Post about maybe going to London Bridge.
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