Hi and welcome, are you in the UK? Has your GP referred you to a specialist as Sticky Blood, otherwise mainly known as Hughes Syndrome/APS or Antiphospholipid Syndrome, requires a specialist with the correct knowledge, this will not only help you, but also your GP. We have them for the UK area by area under pinned posts on the right hand side of the forum.
It is pretty important that your GP also tests your vitamin D, your Iron and your B12, plus your Thyroid as if any of this is not up to scratch you will be run down, also your ability to heal will not be so good. Some patients also end up on Plaquenil for the fatigue, however at this stage I will say that if any of the things I mention here are low level when you are tested it will make you feel very tired.
Lots of people on here will be supportive, and we all learn off each other, the questions asked and the answers given.
Do read the book “Sticky Blood Ezplained”by Kay Thackery. The symptoms you describe may indicate thyroid issues, or vitamin deficiency, ( usually D) or exposure to something annoying your immune system, such as an allergen lurking somewhere or an inconvenient food allergy.
I can understand that this is a very anxious time for you. I am sorry to learn that you lost 2 of your fingers and then this diagnosis. It's rather a lot to digest.
The very best person with whom to discuss your symptoms is your doctor. Make an appointment and take with you a list of all your symptoms and questions you may have. They may want to do a range of blood tests.
Don't leave it - make that appointment because you need to know whether these symptoms are connected.
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