Warfarin and Plavix

[Benna1]

Good morning everyone

As a new member I would like to please ask a couple of questions.

A few months ago after loosing two fingers I was diagnosed with thick blood. The chase of this is unknown to the doctors after much testing.

I'm now on Warfarin and Plavix for the rest of my life.

I however find that I have the following symptoms:

Runny nose, sore joints, low energy, loss of appetite and just run down all the time.

I was wondering if this was normal as maybe my body needs to get used to the medication.

Thank you all much

B

[MaryF Administrator]

Hi and welcome, are you in the UK? Has your GP referred you to a specialist as Sticky Blood, otherwise mainly known as Hughes Syndrome/APS or Antiphospholipid Syndrome, requires a specialist with the correct knowledge, this will not only help you, but also your GP. We have them for the UK area by area under pinned posts on the right hand side of the forum.

It is pretty important that your GP also tests your vitamin D, your Iron and your B12, plus your Thyroid as if any of this is not up to scratch you will be run down, also your ability to heal will not be so good. Some patients also end up on Plaquenil for the fatigue, however at this stage I will say that if any of the things I mention here are low level when you are tested it will make you feel very tired.

Lots of people on here will be supportive, and we all learn off each other, the questions asked and the answers given.

Mary F

[GinaD in reply to MaryF]

Do read the book “Sticky Blood Ezplained”by Kay Thackery. The symptoms you describe may indicate thyroid issues, or vitamin deficiency, ( usually D) or exposure to something annoying your immune system, such as an allergen lurking somewhere or an inconvenient food allergy.

[Benna1 in reply to GinaD]

Thank you much Gina.

[lupus-support1 Administrator]

I can understand that this is a very anxious time for you. I am sorry to learn that you lost 2 of your fingers and then this diagnosis. It's rather a lot to digest.

The very best person with whom to discuss your symptoms is your doctor. Make an appointment and take with you a list of all your symptoms and questions you may have. They may want to do a range of blood tests.

Don't leave it - make that appointment because you need to know whether these symptoms are connected.

With good wishes,

Ros