Heat and Me! : Does anyone else get bad... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Heat and Me!

Greenmil3 profile image
18 Replies

Does anyone else get bad effects from hot weather? It seems to bring on more dizziness and feelings of falling over. That’s without my skin feeling on fire. Does this sound familiar to anyone?

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Greenmil3 profile image
Greenmil3
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18 Replies
Wittycjt profile image
Wittycjt

Yes, please drink alot of water and hydrate hydrate hydrate. Sounds simple but will make you feel so much better. Keep me updated, hugs, Cindy

NicBay profile image
NicBay

Yes just yesterday I had a dizzy/tired head episode -woke up feeling fine but it came on mid morning for several hours. Hadn’t been over exerting myself but can’t think of any other reason trigger it. Rested and drunk loads of water.

Kalykrill profile image
Kalykrill

The heat makes me feel horrible as well. It's been very hot here in California lately. I also hate trouble when it was very cold back when I lived in Utah. Single digit temps and high elevation made me feel terrible. I need to find somewhere to live with perfect weather! Nothing under 30 and nothing over 80!

Gmagolf profile image
Gmagolf in reply to Kalykrill

Lol. Maybe the beach? I also live on in Ca. Very hot here. I’m near Lake Elsinore and golf a lot. The sun is really getting my Malar Rash going

Kalykrill profile image
Kalykrill in reply to Gmagolf

My brother lives in Elsinore and its usually hotter there than where I live in Riverside.

Gmagolf profile image
Gmagolf in reply to Kalykrill

Well we’re practically neighbors. I actually live in Canyon Lake. And yes, it’s hot. My daughter lives in Huntington Beach. Hardly ever gets real hot or cold there but sooo expensive

Kalykrill profile image
Kalykrill in reply to Gmagolf

Yea, I definitely can't afford to live there on VA disability benefits

Gmagolf profile image
Gmagolf in reply to Kalykrill

Me either on retirement

Dot69 profile image
Dot69

I also get migraines and feel more off balance when it’s hot I drink loads of water Remember to drink water all day even when you’re not thirsty

Ageingfemale profile image
Ageingfemale

As soon as I know it’s going to be hot 🥵 I prepare to shut everything up! Blinds drawn, air coolers on and stay indoors. As soon as I go outside I get even giddier, feel as if I’m breathing in fire and I have the feeling my blood is bubbling with the heat. It’s a shame to miss the lovely weather but it’s better than feeling so ill.

hihannula profile image
hihannula

Yes. I get the same annoying symptoms in heat and high humidity. I drink along of room temperature water and try to stay cool.

Ray46 profile image
Ray46

Yes, since being on warfarin I have become very sensitive to temp variations. I never used to have much problem handling hot or cold, now get all sorts of effects including dizzy when it's hot and constant shivering / teeth chattering when it's cold (whilst standing in front of a gas fire in a centrally heated house and wearing jumper and skiing jacket I might add). These problems didn't start when I got APS (were not present after stroke), but rather after I was put on warfarin, and I suspect warfarin is actually the issue.

Greenmil3 profile image
Greenmil3 in reply to Ray46

That’s interesting as when I visit Australia I get shivers in the sun

Wittycjt profile image
Wittycjt in reply to Ray46

I had those problems with warfarin too🤗

jetjetjet profile image
jetjetjet

Heat gets me also especially when i bend over and then stand back up - i have been told by a couple of my Doc's to avoid direct sunlight - long sleeve shirts - wide brim hat - long pants etc BUT i can't avoid it because i have 25 appointments a month from all over the state . so I try to limit the exposure . Tomorrow i have an appointment 60 miles away and have to be there by 7:45 AM so it will still be dark when I leave home. and on way home i have to stop at another Hosp. to do an INR .At this time i hope it is overcast . Best to all C & J

Greenmil3 profile image
Greenmil3 in reply to jetjetjet

That sucks

jetjetjet profile image
jetjetjet in reply to Greenmil3

yes it does -- RIGHT OUT LOUD !! :-)

MaryF profile image
MaryFAdministrator

I have to really watch it in the heat, but am a fan of the wet baseball hat, under the tap, and then wrung out and put on, if I have any jobs to do outside of the house or I feel unwell in the heat, this coupled with the right level of hydration. MaryF

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