HOW CAN CARRY A LIST OF ALL MY MEDI... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,352 members10,541 posts

HOW CAN CARRY A LIST OF ALL MY MEDICINE AND ALLERGY WITH ME.

BrownChocolate profile image
14 Replies

Can anyone help me?

I take 28 tablets a day and I need to find a way to make a list of all my medication, doses and allergies and carry it with me at all times.

I have looked at a medic alert site but need to carry more information than what they can offer.

Written by
BrownChocolate profile image
BrownChocolate
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Davros profile image
Davros

Hi briwnchocolate

I use a smart phone app called medic id to carry mine. Also I have a medic alert pendent from u-tag that includes a special alert USB on it.

Sue2803 profile image
Sue2803 in reply to Davros

Thats a good idea, I just carry a list in my purse.

tiredmum profile image
tiredmum

I have a medic alert bracelet, and they print a small card with a list of medication on it. It doesn't have your doseage on there but they do have a contact phone number.

I also have a green lion pot which i keep in the fridge with all my medical details on it. You put a sticker by your front door, so if an ambulance is called etc they know where to find all you info. You can pick these up from your local chemist.

Hope this is of some help :)

Kentish_Man profile image
Kentish_Man

I wear a necklace 'Allertag'. It is essentially a small, waterproof, cylinder with a piece of paper curled up inside. You can then put all your medications, allergies and contact details on it. I also carry a sheet in my wallet containing all this information as well. In the hope that they will find one or the other in an emergency.

medicaltags.co.uk/allertag-...

I hope that this is of use to you.

heatherx profile image
heatherx

Hi I wear an sos talisman bracelet. If google talisman there site will come up. I chose a stainless steel one so I can leave it on in the bath, beach etc. They have a wide variety of barcelets, necklaces et and are made to length individually. I think it cost about £35 x

Welshexile profile image
Welshexile

I wear medic alert dogtag which has summary info, then detailed info on card in my wallet & I also carry copy of my repeat prescription form in wallet which details meds and doseage info.......

Leigha profile image
Leigha

My medic-alert actually says: 'see wallet for more, plus meds'. Did this as deal with much more than APS and I also take many meds. Perhaps this is an idea?

sbncmo profile image
sbncmo

Hi Brown Chocolate

I don't have quite as many meds as you do, but I'm close. I went to my word processor & did my own list. On the first page, I put things in big red print that needed to be seen before any treatment was started, such as I can't have a tourniquet or any type of tape used on me. The next page has contact info, my SSN, the current date & medical history like shots & surgeries & their dates. Then I have a copy of my living will. Then I have my medications, their dosages & when I take them. (I have trouble with memory, so sometimes I have to pull my list out in order to fill my weekly pillbox) Then I have all my health conditions & meds without dosages, because I have a number of conditions that I'm not able to take medication for. My last page has all my meds - Rx & OTC - that I can't take & I list whether the med caused a side effect or an allergic reaction & what that effect or reaction did to me. Whenever a change is made in my meds or I have a new side effect or allergy that calls for changing the list, I pull up my list from my computer file, make the changes & enter the current date & print out only the new pages affected.

I have a medical warning sign on my front door stating where a copy of my medical information is. I have 2 copies. Doctors & nurses love it - they just take it & photocopy it or scan it into their computer. One hospital decided to write all of my medicine allergies & it took 7 wrist bands!

Everyone here has given excellent suggestions. I also wear a bracelet. I hope all of us have helped you or at the very least, given you some options to consider.

One word of warning to everyone about emergency medical bracelets & necklaces that I saw on the program "The Doctors". They were talking to an EMT who said "DO NOT alter the chains in any way. If you try to make the chain pretty by changing it to beads or something, emergency medical personnel will ignore it because they think it is just jewelry & that could cost you your life."

Shelia

jadams profile image
jadams

One of the Medic Alert sites offers a membership that you pay for each year. Their bracelet's have an ID # and phone # that the medics can call 24/7. When they call, they can give the medical provider all of the information that you have provided to them. That way you don't have to try to fit everything onto a small bracelet or worry if someone will be able to find your list of information.

Sal0712 profile image
Sal0712

I use an ap on my phone called pillboxie. I find it usefull as it also reminds me when and how much medication to take once I've programmed it in. I also carry a little book round in my bag with all the info in and my INR results x

GinaD profile image
GinaD

I carry a flash drive. I have not yet,, but plan to stop by the local ambulance hang out spot and sk them how to best draw an EMT's attention to the drive, which is in a red case strapped to my bag. One suggestion from friends is to wear a medic alert bracelet which says " see flash drive.". I do think such flash drive alerts are going to become more universal. It is possible to buy a dedicated medic alert flash drive on line, except one of the consumer reviews pointed out that their drive had a non-universal format. So this reviewer sent the tailor made medic alert drive back and crafted his own with a more universally readable flash drive. I copied his suggestion.

I keep meds and a brief summary of APLs, and all my docs and insurance co nurse contact info.

paddyandlin profile image
paddyandlin

Simple way i found keep a copy of your perscription has drug and your GP on it if you in the UK

paddy

BrownChocolate profile image
BrownChocolate in reply to paddyandlin

Good Morning paddyandlin,

One of my problems is that I do not carry a handbag and rarely carry a purse so I am looking for something that I can wear that will have all my complicated medical history, allergies and medication.

panda60 profile image
panda60

I wear a medic alert bracelet which gives a summary of my medical conditions and most importantly that I am on warfarin and am an anaesthetic risk. There is a phone no. for paramedics to call and then medic altert can give them my GP details, next of kin and all the medication I am on.

Have never, thank goodness, needed it but feel reassured.

Caroline

You may also like...

List of any and all medicines

suggest that everyone list the medicines and supplements they take. Many can lead to similar...

Sjogrens-just how dry can your mouth get?

barium meal x-ray soon.. At times I can generate some saliva, at others I need a sweet or something...

INR testing- how often do we all test - i need literature

him in his tracks --- need some help with anyone with some medical info...

I've been experiencing Allergies on my skin twice a week.

specify what's going on with me. My allergy only stops when i take my antihistamine medication, but...

how to get my doctor to make referal to haemotologist

Hi I wondered if anyone could help, am brand new to this forum and wondered if anyone had any good...