Inr gone potty...or is that just me?!! - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,413 members10,622 posts

Inr gone potty...or is that just me?!!

Suzypawz profile image
5 Replies

As you may or not know...or forgotten!!! :)

My inr was 3.2, then 2.3, then 2.0, then went up to 2.5 & I thought great....it's creaping up at last! :)

Nope...I had an inr test toaday.....it's back down to 2.0!!!! :(

I havn' done, ate, drank anythink different, don't get it ??!!!

I was convincing myself it was still going up even though I felt like 'POO' for the last 2 weeks, I thought perhaps it was because I had a cold....but now I know it was because of the low inr....again :(

I keep getting shivers in my head, skull, 'freeze' spots on my face, numbness of fingers, right side aching more, more ( if thats possible!! ) wobbly & dopey!

I'm wondering if they may ask me to take something else as well or insead of in the end if it doesn't start stabilizing?

I thought that after 10 years it would have settled down by now!!

Thinking of drinking lots of Baileys to help it at this rate!!! :) :)

I just went in the kitchen to tell hubby dinner was ready....then I saw the cottage pie still on the side!! I'd switched the oven on...but forgot to put it in!! Luckly Salem the cat wasn't in!!

Take care all & keep warm :) xx

Written by
Suzypawz profile image
Suzypawz
To view profiles and participate in discussions please or .
5 Replies
jessielou profile image
jessielou

Hi sue

maybe its time for heparin to try stabilize inr. Cold would impact inr too. Another Hughes moment with dinner then.

Oh dear hon!! Hope you feeling bit better tonight!!

Take care gentle hugs sheena xxxxxxxx :-) :-) :-)

Suzypawz profile image
Suzypawz in reply tojessielou

Yep....I'm sure they'll think of something eventually, hopefully soon I keep getting cold shivers & pins & needles in my right side :( don't like!

Think it's always a Hughes day in our house!!

Take care yourself, hope to see you soon xx :) xx

paddyandlin profile image
paddyandlin

Sue,

Join the club my INR just does not stabalise and it is really a pain in the butt over the last few weeks i have been 1.9, 2.8, 8.8, 3.1, 2.2 so frustrating when i asked the blood nurse she said some people just have INRSW that fluctuate well great!!!!

sorry the only thing another hughes person suggested to me so ill give you the same advice drink lots of wine and little broccli lol

paddy

Suzypawz profile image
Suzypawz in reply topaddyandlin

Oh no....we in another club again!!

I remember when it was just mods & rocker's!!

Now it's low inr club, high inr club, migraine club, wobbles over club....who knows what else :) !!!

It is very frustrating Paddy :( I'm worried of what could happen whilst we're low!

Yep ...like the wine, Baileys & Tia Maria idea!!!

Take care :)

paddyandlin profile image
paddyandlin in reply toSuzypawz

Hi Suzy.

It is really difficult but i find if i get the really bad wobbles and doc not listening i will drink half a bottle of wine as this seams to give me a spike so i can then get it up. I just not sure what the answer is.

NOTICE to all reading this is not medical advice and if you on drugs may interact

CLUBS RULE lol

Seriously maybe you can look at diet etc that was a suggestion i was given i think some peopls inrs are like roller coasters if there is a better way would love to hear it as well.

paddy

Not what you're looking for?

You may also like...

How I know that my blood is thick!

Went & had my INR checked at my surgery 2 weeks ago & it has only been 2.3, the nurse said the...
Suzypawz profile image

Why the headache when INR is ok?

Hi everyone- just me moaning again! Sorry 😐 So finally my bloods are better. If you have followed...
WendyWoo50 profile image

Symptoms even when INR is right??? Or can INR change drastically in one day?

My INR was exactly right (3.6, which has been relieving most of my symptoms) when I was tested...
iwantsimple profile image

Why is my INR so low?

Prior to having surgery to replace my right shoulder, I was taken off warfarin and put on lovenox...
MrBigDog profile image

INR leveles? What is considered to be normal for people with APS?

Hi:)! I'm comming from Serbia and I wonder if the INR ranges are same in my country and in UK? I...
ginger_lover profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.