Treatment for lupus anticoagulant pos... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Treatment for lupus anticoagulant positive patients.

AsimR profile image
10 Replies

Hi every one

Im 33 years old . i was diagnosed weak positive for lupus anticoagulant few months back. had two miscarriages in the past at 13 weeks and 15 weeks of pregnancy. But didnt know that i had this disease.now im 11 wks pregnant n currently on loprin (asprin) 75 mg and clexane 40 IU both once daily.

Just want to know wat is the success rate of this treatment in lupus positive patients. plus these medicines also have their own side effects. if any one has had healthy child after going through this treatmnt please share your experience.

Thank you

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AsimR
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HollyHeski profile image
HollyHeskiAdministrator

Hi welcome, so sorry for your loses.

My experiences were prior to diagnoses but lots on here have similiar health issues.

The good news now is that you are on the right treatment.

Where are you based?

AsimR profile image
AsimR in reply toHollyHeski

Im from Pakistan.

HollyHeski profile image
HollyHeskiAdministrator in reply toAsimR

Again welcome, to be diagnosed with APS is a good step forward.

The support and experiences you will get here will really help. I appreciate your scared, but you are on good medication.

Congratulations on your pregnancy xx

AsimR profile image
AsimR in reply toAsimR

I want to know whether these medicines effect the baby or not. baby's growth and delopement. because they do have their own side effects.

Yllek profile image
Yllek

Hello and welcome

I'm sorry about your losses. I have had tragedy followed by healthy children so please don't give up hope.

I had 3 miscarriages, then my beautiful girl did not grow properly and was born prematurely and died aged 6 weeks. I was not tested for APS during this. I was subsequently put on aspirin due to my problems and had a healthy girl followed by a healthy boy. The aspirin no doubt saved them both. I then had another baby but was advised not to take aspirin and I had a placental abruption at 33 weeks - thankfully after a rough start my little girl survived.

I wasn't diagnosed with APS until 6 years later when I had a spinal stroke and two TIAs.

You are certainly on the right treatment and it's best to know so you can be well looked after.

Good luck x

antiquedolls profile image
antiquedolls

My daughter lost her first baby at 23 weeks due to Hellp Syndrome and was subsequently diagnosed with APS. She is now at 28 weeks pregnant with her baby weighing at 2.7 pounds! All is going very well and I pray it continues. She was started on baby aspirin prior to getting pregnant. Once her pregnancy test came back positive (2-3 weeks pregnant), Heparin was added to her daily routine. She had very high levels of Lupus Anticoagulant and was triple positive. Baby is testing 8/8 for skills he needs to do :). She goes to Dr. twice weekly for monitoring and blood work. Scary time but they are keeping a close eye on her. We had great relief when she got past 24 weeks! She'll be 29 weeks tomorrow, no signs of preeclampsia. There is hope!

Sara_A profile image
Sara_A

Hi I have aps and lupus. I have had 2 healthy children, first child I was just on aspirin and second child I was on aspirin and fragmin. Hopefully now I have the diagnosis and the right treatment u have every chance of a successful pregnancy.

Lure2 profile image
Lure2 in reply toSara_A

Hi, I can not find where I suggested you should put a new question on our site.

That could be seen by everyone at once. Look at the site to the right "Write a Question".

Kerstin

Lure2 profile image
Lure2 in reply toLure2

Wrong: should be "Write a post" (green label)

Kerstin

Lure2 profile image
Lure2

I am sorry that I wrote to Sara A on your question! It was ment for her. Could you just please forget about it

Kerstin in Stockholm

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