Getting better: I'm still with slight... - Hughes Syndrome A...

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Getting better

Debbweb01 profile image
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I'm still with slight Migraine! Asthma pretty bad! Just a funny note I lost my Nebulizer for Asthma treatments! This time Kelly, no one to help me look for something! Bought new one shud be on mend soon lol... How does one loose big items like that! Well I only get asthma attacks every 3 years! Usually end up in hospital on Prednisone Drip! Trying to avoid that lol... Thx for all ur input I have lots of rib pain and shoulder blade pain for months now!!! I must get chest X-ray! I'm nervous! I hope things get better in UK with all the problems there! Here we're on verge of Civil War!!! It's Crazy!

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Debbweb01
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KellyInTexas profile image
KellyInTexasAdministrator

So sorry Debb! It's easy to loose things when the INR is low- couple that with feeling bad- and it's bound to get crazy. ( loosing that prosthetic leg, though. That is the best story I've heard in a long time , gotta tell ya! Now when I'm roaming around the house looking for random things I can't find, i think of you and have nice laugh, of course only in the nicest way❤️😊!

Sorry about the asthma... awful...so you have two sisters, Anne and nanny? Both have APS also? Both in ny? You have a brother in Colorado? ( Anne mentioned she saw Jill Schofield while on a visit with him in CO.) He is APS free?

I'm in Princeton right now. In the hospital ( outpatient for now.) I have a clot! I saw an internist. He wasn't happy with low INR so sent me to a heme. Arm was in trouble again. Swollen and painful. Diagnosed a clot on the spot. Now in waiting room for a scan to determine if the one I was hospitalized for on may 23 has just not resolved or has reformed. ( I can't get INR to stabilize.)!

I'm now in 17 mg Coumadin daily.

( check the freezer for the nebulizer. Maybe you'll find my tooth brush in there!)

Wittycjt profile image
Wittycjt in reply to KellyInTexas

So how are things now Kelly?

Wittycjt profile image
Wittycjt

Glad you're feeling better Debweb!

Debbweb01 profile image
Debbweb01

Hi Kelly how r you? Omg just read this! No I have one sister and she has APS and thyroid issues! She's never clotted b4! Her numbers lower than mine! Thank God! Even tho I'm younger than she is, I feel like I gave it to her! I guess cuz I had it first! I made her get tested! Poor thing has lots of stomach issues as I do! We realize as we got older we're a lot more alike than we thought and have grown closer thru this all! She also lost a son at age 23! My son 24 when he passed! I hope you're ok! Let us know how ur getting on!!! GODSPEED!!!

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