Treatment which begs belief - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,601 posts

Treatment which begs belief

stillwaiting profile image
5 Replies

Yesterday I went for a follow up gp appointment after my month of vision loss, speech problems etc. The gp office saw how poorly I was phoned hospital direct sent me in an ambulance ~ sirens and blue lights ~ another suspected TIA. A&E agree, do ct scan and keep me in overnight to see the stroke team and a possible mri today.

I had bad chest pain. One dr suspects PE but colleague says well shes on warfarin so if it is it will get better ~ no xray done to confirm and monitor.

My swallow improved after the aspirin but then I felt a pop near the artery at side of neck ~ very giddy, sick, worst headache ever. Have to sit with head perfectly still for 3 hours. The hospital did not check it out ~ even though I told 8 members of staff over the 2 wards I stayed on.

Stroke consultant who has many aps patient told me the vision and speech problems I have had are not TIA symptoms. I get sent home with TIA diagnosis revoked.

This is my worst episode ever ~ still dizzy, cant walk in a straight line, face numb, and now I find that reading is difficult again ~ cant track across a page without feeling dizzy and sick. GP has said to go in this afternoon and they will check my neck and decide what next.

Written by
stillwaiting profile image
stillwaiting
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Lure2 profile image
Lure2

Re your anticoagulation; have you asked for a trial of LMW Heparin suggested by APsnotFab some days ago?

I have forgotten if you Warfarin is working. Probably not as you have a lot of symptoms. What does your APS Specialist say about all this?

Best wishes from Kerstin in Stockholm

stillwaiting profile image
stillwaiting in reply to Lure2

Gp is now directing me to a neurologist with a view to a discussion of new medication and frequent supervision appointments. She also confirmed that I have had TIA and helped us with meds and support.

Thanks for your help.😊

stillwaiting profile image
stillwaiting

My target is 3. I self inject when not near that and / or am symptomatic. Thank you for your help.I am finally getting a bit more assertive.

MaryF profile image
MaryFAdministrator

If you are not improving you MUST go back to A&£, and take somebody you trust with you, to act as another set of eyes and ears and stick up for you. MaryF

ZRHONDA profile image
ZRHONDA

I sure hope they can figure this out. I know it's so frustrating to be in pain and the spmtoms are scary. I hope they figure it out quickly. Prayers for you ♡♡♡

Not what you're looking for?

You may also like...

Clear MRI/mra odd symptoms

So it's been a rough two weeks, we lost a baby at 9 weeks and then had a d&c a couple days later....

Could this be APS

Hi I’m asking for my 40 year old husband. Since September he has been quite unwell. We returned...

Not sure if i had or am having strokes or TIA's

i've had 7 or 8 stroke like attacks in 2 weeks time i have sle lupus i'm 26. i took gabapentin for...

I have just been diagnosed with Antiphosholipid syndrome - can anyone explain the strange head feelings.

Hi everyone, just wanted you all to know that I think this site is really helpful and I think I...

Flu without the Cold?

3 weeks ago, I joined this group following TIA or a hemiplegic migraine, the jury is still out on...