I need to vent as its not something I find people IRL understand.
I was diagnosed 3 years ago with APS and a lupus like syndrome. I'm on a watch and wait for sjogrens and vasculitis and also suffer Raynauds.
I have a fabulous consultant who keeps a close eye over me and checks my bloods thoroughly every 3/6 months.
I take warfarin with an INR 3-4 and self test and hydroxy daily. Since being on these meds my migraines, neuro symptoms and fatigue greatly improved.
But.... For the last few months I'm suffering horrible migraines with auras lasting Upto a few days, my neuro symptoms are returning and my vasculitis/petechia has returned all over my feet and legs.
I see my consultant in 2 weeks and can't wait to offload. I'm just so frustrated with feeling my conditions are under wraps and trying so hard to let them control me. Then bam!!! I feel back to square one.
Thanks for letting me vent. tommorrows another day huh!