Hi everybody I was hoping I could get some other APS sufferers views on this.
After much research I convinced my GP to run the APS antibody tests. I came back positive for Lupus anticoagulant. He told me if I test positive in 12 weeks he would gladly refer from to a rheumatologist. Last week my second blood test after 12 weeks came back positive again but my usual GP who agreed to refer has moved on. I saw another GP today who I had seen before I had the blood tests where she told me I did not have APS. I was very reluctant to see this GP again but I thought now I had the positive blood tests she would believe me.
I started the appointment by telling her about the progress me and my usual GP had made and I had both blood tests test positive and could she please refer me to a rheumatologist. I was shocked at her reply she said she was not sure about referring me on as I have not got typical symptoms of APS. I have tons of APS symptoms. I told her I get a lot of superficial vein clots but only clot I thought was a DVT seemed to go away on its own in a couple of weeks after really intense pain. She in the end agreed to refer me but said it was probably a waste of time and the doctor will say I have nothing wrong with me. I was quite upset by this appointment.
So the questions I have about this situation are
I thought 2 positive blood tests 12 weeks apart was enough for a diagnosis and referral is this not the case?
Will a GP not refer you for APS until you have a bad DVT or stroke?
Has anyone ever had a DVT which disappeared on its own?
Thanks so much for reading and any information.