Neuropathy Symptoms?: Has anyone... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Neuropathy Symptoms?

Ilca123 profile image
3 Replies

Has anyone experienced symptoms of transverse myelitis or guillain barre? I experienced acute urinary retention for several days, part of which I had a burning/tingling sensation on my pelvic area and feet.  My bloodwork showed cardiolipin antibodies but I have never had a clotting event or miscarriage. Could there possibly be a relation? The symptoms seem to have gone away on their own with no treatment. 

Written by
Ilca123 profile image
Ilca123
To view profiles and participate in discussions please or .
3 Replies
MaryF profile image
MaryFAdministrator

Hi there, enclosing this for you:  rheumatology.oxfordjournals...    and  emedicine.medscape.com/arti...

Some patients also have a history of glandular fever.    MaryF

Yllek profile image
Yllek

Me!! Last year I had bilateral leg numbness, difficulty walking and no sensation in my bladder. Drs didn't actually have a clue what was wrong with me. I recovered from the numbness to be left with excruciating leg pain and muscle tightness. All the time this went on Drs dismissed me. 

Not until this year after having a TIA and being diagnosed with APS did they finally admit I probably had a spinal clot! 

Xxx

daisyd profile image
daisyd

I had problems with passing urine which greatly improved when I was prescribed Hydroxychloroquine, it has to be the placqunil type, I am on 400mgs a day

Hopefully it might help you 

Not what you're looking for?

You may also like...

neuropathy

I found out today that the pain and numbness in my feet is neuropathy associated with my APS....
mylafont profile image

Odd leg symptoms

Earlier this week I started having pain in my groin area on the left side and still have it. My...
Holley profile image

Stroke like symptoms

Hi everyone I have posted this question on the Hughes and Lupus sites. Please could anyone who...
janekins profile image

APS Symptoms

I have a appointment with a Rheumatologist this week. I was diagnosed with APS 2 years ago and am...
csue2 profile image

Neuropathy Now...

Hi all, it's been a bit since I've been on the forum. Longing for any possible insight that any of...

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.