INR: Hi. I'm APS positive. This month... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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janeingirona profile image
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Hi. I'm APS positive. This month my blood test showed high Acl for first time in years!

My in is 1.3, which is very normal. But Ive been very achy and headachey.

I notice many of you talk about ranges between 2 and 3. Are my docs missing something?

I'm on baby aspirin and have had multiple long-term miscarriages. No other thrombotic events.

Thanks

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janeingirona
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Manofmendip profile image
Manofmendip

Hello

INR is not affected by Aspirin but is only affected by Warfarin.

I hope this helps and clarifies things for you.

Best wishes.

Dave

Lure2 profile image
Lure2

Hi,

I think you have to explain some things to me: First of all I hope you have an APS-Specialist. I have also read that you have been diagnosed with Fibromyalgia. Sometimes Fibro is not Fibro but has to do with APS or some of the "cousins" (SLR, Sjögrens or even Thyroid)

An INR of 1 or 1,3 is what all persons have when not taking any anticoagulations. Baby-Aspirin is not an anticoagulation drug but an antiplatelet-drug.

I now wonder if you are on Warfarin because you talk of an INR of 2.0 or 3.0. Perhaps you have read what we talk of when on Warfarin.

I hope you will find an Expert who knows what to look for re symptoms and diagnoses. That is important to get the right treatment with can be difficult as so few doctors know APS.

Have you read "Sticky Blood Explained" by Kay Thackray? She has APS and writes about the different symptoms and how it is to live with this illness. It is a very good book but the latest oral drugs are not in it as it is a couple of years since she wrote it. Still we have the same symptoms!

Best wishes from Kerstin in Stockholm

MaryF profile image
MaryFAdministrator

Hi, unless you have had an actual clot, they are likely to monitor you and keep you on Aspirin, but of course you must monitor yourself also, if anything changes do tell them. MaryF

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