Sore joints: Hi everyone I am having... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Sore joints

johnlane profile image
9 Replies

Hi everyone I am having sore joints in my shoulder, back, hip & knee. I am wondering if any one else has had this happen to them and what I can take to ease the pain.

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johnlane profile image
johnlane
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9 Replies
MaryF profile image
MaryFAdministrator

Hi it is not unusual to have pains likes this, however you need to talk with your main specialist about what you can take. However in the mean time do get your GP to look at your levels of Vitamin B12, D and Iron, to make sure you are in range. MaryF

Nanny23 profile image
Nanny23

I have terrible pains in my legs after work. Pins and needles too. After I put my legs up and rest a while it eases up. Hope you feel better.

Nanny23 profile image
Nanny23 in reply to Nanny23

Forgot to say I on my feet from six a m til two pm

johnlane profile image
johnlane

Hi Nanny23 I am off work at the moment as I had a heart attack last year and my immune system was attacked leaving me with Hughes Syndrome. I find it helps me to take paracetamol for the pain. I am hoping to go back to work soon but I need to get the pain under control

Nanny23 profile image
Nanny23 in reply to johnlane

Sorry to hear about heart attack I'm still new to all this don't even know if I have the right Dr yet hope you feel better soon

Nanny23 profile image
Nanny23 in reply to Nanny23

What is parcemetol.? Never heard of it

johnlane profile image
johnlane

Sorry misspelled should read paracetamol

Tlove profile image
Tlove

Paracetamol has a different name in the US, maybe this is why you don't know it but I'm not sure what it's called there. I've often looked for it to get a big tub when I've been there but could never figure out which one it is!

CheddarAddict profile image
CheddarAddict

Bad days I walk down the stairs like an old penguin ... Getting going and moving about is the best thing I find although that is the complete opposite of how it makes you feel when it is kicking in ..

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