Hi Guys, I just had another INR (weekly at present) and I have dropped again to 2.1. I can't seem to stabilise, and my dose keeps going up. ( We are aiming for over 3) I am now on 14mg. That is the highest my GP has ever prescribed. How does that compare to the greater APS community? I have also agreed to a MRI after an episode a few weeks ago where I woke feeling off, and found I couldn't walk properly, was dizzy and nauseous (no I didn't have anything to drink - although it felt like I had had 20 beers!) I managed to stumble back to bed and sleep, where the next morning I woke feeling less severe. Most of the symptoms have resolved themselves, but I have a headache/pressure behind my eye. My vision seems ok. (I wear glasses anyway) I have had an unconfirmed clot in my eye before (it had resolved itself before I got to medical treatment - but I knew what it was) I don't remember a lasting headache like this. It took me a few days to start to worry about this and go to the Dr - as I suffer Dr fatigue, and they said they didn't think I had had a TIA? Any ideas?
And whilst I'm typing I wanted to ask - how many out there with APS have had their gall bladder removed? I seem to see a bit of commentary out there with regards to this. I have had mine out in March after months of pain and tests. I had no stones, nor am I fat or forty. I have not tested positive for Lupus, but from my reading of some other posts, I am wanting to review the tests conducted to date and what other tests they could do.
And lastly, I saw mention of people feeling like they can't catch enough breath, weight on chest sensation, neck pain. I am constantly sucking in big breathes, and don't feel like I get enough air, whilst my oxygen levels are fine. It interferes with me talking and eating. Drs have said stress, but I don't think so. (not that APS is stressing me out at times). I also have a pulling or straining feeling through my neck/throat. Nearly a bulging feeling. It feels odd, and again drs have no idea?
Wow that's a long post! I'm sorry- its just the more I read, the more questions I have.