Hi all. I am newly diagnosed with Hughes Syndrome and am so confused about so many things. I will write properly very soon when I'm on the laptop but in a nutshell here's a bit about what's gone on....
I'm 31 and have just had my second stillborn daughter, Ella Rose, who was born on December 21st 2012. I was just over 24 weeks, I can not describe our heartbreak. We also lost another daughter to stillbirth early last year, Lilly-Mae.
The night before I had Ella, I developed a clot in my femoral artery. I had numerous infusions from then until mid January this year after a lengthy stay in hospital.
I had a check up yesterday, and the clots still there. They say they need to-do surgery, either.a.bypass or an operation to cut the nerves (I don't understand that opposite fully)
Has anyone any knowledge of these ops? They are only doing it as a last resort as I'm suffering terribly with lack of oxygen and blood to my leg, so painful.
I was only diagnosed after Ella, despite having a serious stroke at 27, my firstborn Chloe was born 10 weeks early due to my placenta being full of pls, filled by losing my girls.
I'm terrified to have surgery when I know Italian likely to make me clot more, and would just appreciate any general advice on the condition.
Thankyou for reading, I'm sorry this is rushed. Typing on my phone take forever!