APS specialist in Australia?

[rockcats4]

Does anyone know a specialist in Australia? East coast would be preferable. Lots of doctors know a bit but would not define themselves as a specialist. Any info truly appreciated.

[Hughes-Comrade]

OzChick might know...

[MaryF Administrator]

Hiya, enclosing the charity website, with that and some local knowledge on here, hopefully you will find some help. ghicworld.org/ghic-consulta... MaryF

[KellyInTexas Administrator]

Where along the east coast are you located? Near Rockhampton by any chance?

Gold Coast?

[rockcats4 in reply to KellyInTexas]

Hi there I live on the Sunshine Coast just north of Brisbane but happy to travel. Rockhampton I visit often. Any doctor who has knowledge would be great.

[suntap]

Hi Rockcats, I am in Brissy but don't have an APS specialist. My GP has referred me to an immunologist, rheumatologist and others, but none of them were specialists in APS and I wasn't impressed with them. So now I am just under the care of my gp who has learnt about APS along with me. There is lots of good info on this site and also research papers that I print out and give to my gp. Best of luck.

[KellyInTexas Administrator]

rockcats4,

A lady on here, Ozchick , has been participating in comments on posts today after a hiatus due to a health crisis of her own with APS.

She is in Australia, I believe in the outskirts of Sidney.

Because she is active ( somewhat) today, do you mind reaching out to her and asking her who her specialists are ? What her opinions are?

Otherwise I spoke with my husband day before yesterday. Our good friend lives near Rockhampton, right on the ocean. ( little town starts with a y - Yampoon? )

Also has a home in Bilouela ? ( spelling?) a bit more inland? He has a commercial mugwump farm. He used to live in Texas - as a teenager. He’s now 62 like my husband. A couple of summers ago my husband and our 17 year our son visited him there.

His wife sadly passed of cancer - but we were all such good friends.

Our friend Frank has learned a bit about APS. I wonder if his wife had a really good oncologist/ hematologist he still has ties with? ( these are really a lot of unanswered questions.. too many.)

This is why I asked where you were. If you had specialist of APS in Sidney… and a GP local to support you- as long as they could tie in with Sidney specialists…. You need local support on the coal face of it.

Sounds like Brisbane would be closer- and Suntap already has a GP who at least has heard of it…

[rockcats4 in reply to KellyInTexas]

Thanks for all that. It’s Yeppoon that is near Rockhampton.I’ve been in contact with Ozchick and got the name of her specialist.

My doc asked at a meeting of professionals on the coast here and no body had experience with the disease.

Once a year I see my heart specialist who knows the name and read a bit and I rely on the blood clinic to adjust my Warfrin

In a few weeks I will make contact with Ozchicks doctor. Many thanks for your help.

[KellyInTexas Administrator in reply to rockcats4]

Perfect! I’m really glad you have a solid plan.