Saw doctor today. All test were clear which is great but he also said I had a negative blood test for ApS.

He looked at my notes and i had a negative test before my son was born but I was still given asprin and fragmin. He repeated the test and will do again in 3 months. If negative again he might take me off warfarin. Im so confused !!! Anyone else had the same thing ? Xx

[MaryF Administrator]

You must explain in person and in writing about Seronegative Hughes Syndrome/APS and please look at our pinned notes section on this forum, and also the new page on the charity website. You can send them links to the papers on this and explain that should you have a stroke or incident you will hold them responsible for this! MaryF

[Manofmendip]

I agree with my colleague Mary.

Dave

[Hidden]

That's what the doctor said but U explain it better thank U He said i may be better on asprin than warfarin if next two tests r negative. What do U think? Xx

[Lure2]

You have had two strokes earlier. As APsnotFab is saying you run the risk of further clotting if you let them take the warfarin away! Aspirin is working different compared to warfarin.

Best wishes to you from Kerstin in Stockholm

[Hidden in reply to Lure2]

I haven't had strokes. I miscarried at 22 weeks and had a prem baby at 29 weeks. I've had no blood clots xx

[Lure2 in reply to Hidden]

It was Dobiedogz (answered above).

So good that I was wrong and that you had not had any strokes!

Please forgive me also.

Kerstin

[Hidden in reply to Lure2]

Sorry I misread xx

[Hidden]

I have been seeing dr arvind kaul at st Georges who is off the list from website he works with Prof Hughes. He said he wouldn't do anything I wasn't happy with its my decision . Im the same as U i had a miscarriage at 19 years old then 2 successful pregnancies. Apart from these pregnancies i had no treatment for 17 years. My symptoms (headaches,fatiuge,aching) started about 2 years ago. Im 37.xx