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Hughes Syndrome APS Forum

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Sharp headache.

xoxo_kalijo05 profile image
8 Replies

Last time I had a sharp piercing pain go right through the lower part of my head when I was younger. Today it happened again, this time it hurt so bad that I instantly started crying. The pain wasn't gone in seconds. It felt like forever. But I've never experienced that bad of a pain in my entire lifr

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xoxo_kalijo05 profile image
xoxo_kalijo05
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8 Replies

Known as ice pick headaches. Many on this forum have experienced similar.

Someone else will be along soon with more info.

MaryF profile image
MaryFAdministrator

Hi, Do you have Hughes Syndrome/APS and where were you diagnosed. MaryF

Mojo55 profile image
Mojo55

Hi

I get these too , but just recently I have been getting migraines that are are different to what I get , horrible nausea sensitive to strong smells headache my left eye lid has a life of it's own doesn't want to open properly when my eyes blink also my ears are affected tinnitis , I ideally get my grained with auras and dizziness. I have had these symtoms for eleven days i first woke up with the severe nausea,

I am not due to see heamatologist till tenth of December for my results of second lot of blood results for aps.

Mojo55 profile image
Mojo55

Sorry about the spelling.

Lure2 profile image
Lure2 in reply toMojo55

The most important question is now that you get an APS-doctor. I have read that you have done the bloodsamples. Even if you do not have positive bloodtests you may well have APS.

The symptoms you described a month ago I recognize as APS-symptoms. I had those and I have APS and have to have my blood thinned because of too thick blood as we all have when we have APS. We must thin the blood (Fragmin, warfarin or something else) to feel OK again.

Please come back to us when you have seen your heamatologist on December 10th! I want to know what the doctor said and if you had positive antibodies on the bloodsamples.

Take care till then......

Kerstin

GinaD profile image
GinaD

Have you been diagnosed with APLS? And if so, are you taking any medication for it?

Mojo55 profile image
Mojo55

Thanks Kirsten , I will definatly let you know how I get on as soon as I get results and hopefully some treatment , I am really fed up with feeling unwell . Take care

Mojo55 profile image
Mojo55

Hi gina D got one lot of posative results for aps but get my second lot on 10 dec not long now till I know my results and some treatment if aps,when I went to see heamatolagist six weeks ago he said he did think I have aps from my symtoms.

Thanks take care.

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