Hi

[Claudia65]

INGLÉS

someone suffered from interstitial cystitis? mee say is common in autoimmune diseases

[Manofmendip]

Hello

Have you been diagnosed with APS?

Dave

[Claudia65 in reply to Manofmendip]

My daughter

[MaryF Administrator]

Hello, do you have a diagnosis of Hughes Syndrome/APS and where are you located?

MaryF

[Claudia65 in reply to MaryF]

Mexico

[MaryF Administrator]

And this form of cystitis is common, especially around Lupus, I have been told I have this, but I get less bouts since putting myself on a supplement easy to get hold of called D Mannose which is more effective than Cranberry and is also not indicated to cause problems with Warfarin, I notice it is written up on the general info out of St Thomas'. I shall never stop taking it due to how successful it has been, an 85 percent improvement for me. MaryF

[Claudia65]

Thank you!!!

[Sandrapanda]

Hi Claudia - I have IC, as well as APS, and hypo-thyroid. I was in remission for many years after taking Elmiron, and unfortunately have had a bad flare-up recently due to a lot of hormones I am on while trying to start a family. I also believe I may have Raynaud's, but that has not been diagnosed yet. Elmiron was a lifesaver for me, though I do hear not everyone experiences relief when they take it.

[Claudia65 in reply to Sandrapanda]

Thank you!!!

[Lexi_Img]

What is this Cysititis?