The one symptom that has impacted my life more than any other symptom is fatigue. I have been reading about modafinil. It's main use is for people with narcolepsy, air force pilots, people on shift work (need to be awake in the middle of the night), and business travelers who are making a time change and need to be awake.
However, I have found some people on lupus websites that discuss modafinil (provigil) and how it helps them with fatigue. When used daily, It looks to be effective for a few months before becoming less effective. In order to keep it effective, some people seem to recommend using it just for the critical fatigue days, while others seem to take a few days off from taking it every week (or month).
The only thing I found written about use in people prone to blood clots was this from the pharmaceutical company that makes it:
"People who are taking the anti-blood-clotting medicine (anticoagulant) warfarin should have their blood clotting time monitored regularly during the first two months of treatment with this medicine and after any dose changes."
Does anyone have an information or experience with modafinil (provigil)?