Thousands of ectopics : Does anyone get... - Arrhythmia Alliance

Arrhythmia Alliance

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Thousands of ectopics

stargazey profile image

Does anyone get 13,000 PACs in 24 hours with no treatment offered? Just told they are benign but that's not what I have read. I feel awful all the time but GP just says "your heart's doing what it always does". Not reassured.

12 Replies

If you are symptomatic you need to be referred to a Cardiologist for assessment and treatment. It can take a few attempts to find a Dr who will take you seriously and offer treatment.

stargazey profile image
stargazey in reply to bantam12

No choice where I live they aren't intersection and I travelled 80 miles to see a private cardiologist which cost me £200. He arranged CT angio which was clear, I paid for that echocardiogram and GP arranged 24 monitor. Can't keep paying out and beginning to think "I don't care, if it kills me it kills me - just hope it's quick and I'd don't linger on after a catastrophic stroke".

bantam12 profile image
bantam12 in reply to stargazey

I was getting over 20,000 a day but it took 6 years and 3 Cardiologists to get treatment.A 24 hour monitor is useless, you need one for at least 3 days preferably more to give a decent reading.

Unfortunately Drs don't take us seriously so it's a hard slog to get help but you have to be persistent, maybe ask to try a beta blocker to see if it helps.

stargazey profile image
stargazey in reply to bantam12

They wouldn't do a three day monitor. I found some old correspondence and five years ago I was getting 8,500 so that's an increase of over 4,500 a day. Trouble is I live in Cornwall where healthcare is very limited. I'm a pensioner and have already laid out hundreds. I had beta blocker a while ago but took heart rate and BP too low. Might try again. Thanks.

its not easy to believe. I get 25 to 75 Pacs a day and find that hard enough to deal with, plus PVCs and PAT (tachycardia), I have GAD and panic disorder with agoraphobia and cant seem to get on a medication of any type right now so it happens all day and night. I hope you dont feel all of those.

stargazey profile image
stargazey in reply to MFM008

Please believe! No I don't feel all of them but they feel worse when sitting or feel eating so don't know if hiatus hernia is involved vagus nerve, etc,

Yes i do stargazey, i was amazed the first time that number was caught on my heart monitor but have had many higher numbers than that over the years. I thought my cardiologist would be appalled but no, he was quite ok about it. I hate those horrid ectopics.

stargazey profile image
stargazey in reply to meadfoot

I don't have Afib at the moment but if it develops I cannot take blood thinners due to having a brain bleed three years ago, also had three microbleeds (well that was two years ago but could be more now). Clear CT angio. I read that anything over 100 a day are a potential problem. Does your cardio say nothing?

I have a top notch cardiologist in one of central Londons major hospitals. I have ultimate faith in him. He is extremely highly rated with his peers so i have chosen to be comforted by him being not worried by them. The fact they are so debilitating causes me hassle on a symptomatic level though. They come and go in my case so i do get freedom from them but when they do come they last for several weeks .

This might help as an example. After crashing my motorbike Wrexham hospital found very strange heart patterns with a large number of ventricular ectopics(cannot give a number but certainly thousands} . No symptoms but I surrendered my driving license. This prompted me to go private. I had the usual tests such as stress, ultimately it was found that my heart structure was fine. The ectopics are well controlled now by bisoprolol 1.25g daily. I use an emay monitor which shows virtually none. If your heart is sound the received wisdom is that that ectopics are usually benign. In your case, given the number, I would get another opinionand maybe ask about beta-blockers. I am currently driving under sect 88 road traffic act as my cardiologist has cleared me as fit to drive btw.

stargazey profile image
stargazey in reply to Meeshell1

Thank you so much for your reassurance. Going to talk to GP while I wait for cardiologist to ring. Was getting 8,500 in 2016. I did a four mile walk today and if anything I felt better until I sat down, ate and relaxed on sofa. Then they were just continuous jumps and flutters.

Believe to your dr. I had the same problems many years. Paroxitin was my solution. I am Ok 2.5 years.

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