Hi just and update on my 11 year old Daughter who was diagnosed with AVRNT 3 years ago. She went in for her cardiac ablation in December on her 11 Birthday and I'm happy to say since that she's off all medication and has not had 1 single issue since We've been given the all clear at her follow up and told no need to see her cardiologist for the next 2 years. The relief is major as leading up to her procedure she was having constant breakthrough episodes (weekly) even with the Bisprolol being upped twice in 6 months.
I suppose my reason for this post is that I know people can be nervous about getting it done and some prefer to stay on medication but she is like a different person ever since she had it done. We don't panic now if she forgets to bring her ekg monitor with her somewhere and I'm not constantly waiting on a phonecall from her school to say she's stuck in SVT again! I know there is a 10% chance of a reoccurance at some stage but hopefully that won't happen and she can just get on with her childhood worry free.