Scared all the time, please can you help - Arrhythmia Alliance

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Scared all the time, please can you help


Scared all the time, please can you support a bit... I am 52 years of age. All my life I've suffered anxiety and panic symptoms started in my twenties although not severe back then. I had palpitations from my early twenties but they were never that bad or that often. I was diagnosed with ulcerative colitis in 2017 and put on Prednisone in Sept 2018. I am still taking a low dose of it. In March 2019 I started to get really, really bad palpitations - stronger - flutters mostly, that wouldn't just go away straight away, but would last a while, or come and go for hours off and on. It's like torture. I've had a few really bad episodes that I was convinced I was going to die, and every day I worry that will happen. I have cut out caffeine and alcohol, tried to exercise, and it makes no difference. I get palps randomly, at home, when I wake up, before bed, during the day, etc. And after a larger meal. I am scheduled to have several tests done soon to find out what's going on. My mom had heart palps and so did my grandmother. I probably have atrial flutter or atrial fibrillation. Part of me thinks the Prednisone i take for my bowel disease has been the trigger to make this worse. But I just want it to go away. Driving me crazy. I am tired of always being scared and never feeling normal. I limit my lifestyle because of this and I always fear having palps when I am out. I take Magnesium and that also makes no difference. I seem to sleep alot, nap alot where I didn't used to. I also sometimes feel light headed and off balance although I'm not blacking out or anything touch wood. Please can someone reassure me. I need this. x

10 Replies

Hi Dani

What you describe sounds very typical of what we all get with our heart arrhythmia's, but be aware that your fear will feed your abnormal heartbeat and make it worse. When all this starts for us most are afraid, but AF is very unlikely to kill you and as time goes by you just do your best to live with it.

You mention that you've cut out alcohol and caffeine, but have you also cut out all food containing artificial additives and turned to a more plant based diet? This has helped reduce my attacks greatly as has reducing my sugar intake. Artificial sweeteners were a great trigger for my AF and they were hidden in things like so called healthy yogurts, drinks, chewing gum and I even added them to my hot drinks.

What type of magnesium are you taking and are you on any heart medication like anticoagulants or beta blockers etc?


Hello I am 60 and my problems with pvc started when I was 50. I know how you feel.

Anxiety is the problem nr 1 . I finally decided to take antidepressive Paroxat and I feel 100% better. I wish I would take it already 10 years ago . Think about it. Good luck.


Before any of us can even try to help you, you need to go to the hospital, or to a doctor and find out what kind of heart palpitations you're getting. Absent of that, you're not doing yourself any favours, and it will only continue to fuel your anxiety, and it may be doing your harm depending on what is going on. An EKG, a Holter monitor, and an echocardiogram are probably what will transpire once you go to the doctor. After the results of them, you'll have a much better understanding of what's going on and potentially why. But to ignore going to the doctor or the hospital to get some definitive answers is not a wise thing to do. If you suspect you have atrial flutter or atrial fibrillation, then you need to find that out, and depending on what other health issues you have you may be putting yourself in more danger by not being treated properly for it. For example, if you do have atrial fibrillation, and you have high blood pressure or you're a diabetic, you put yourself at a significantly higher risk of stroke by not being on an anticoagulant. These are all things that you can find out by going to the hospital or your doctor and getting some proper tests done. Go get the tests done, especially when you're having these heart palpitations, and then let us know how you're doing. Once we know what you got, it's a lot easier for those of us who have something similar to help you along the way.

Echoing Verinator's advice above - like all of us on here you've come to no harm so far, and they do go away, so do take some comfort in that. But also, if you've not already done so, make it top priority today to arrange for a specialist medical opinion on these changes, and put your mind at rest after a professional has a good look at exactly what your heart is doing during these palps. That in itself should help a lot. They can take into account your current meds and might find something more suitable for your condition.

dani777 in reply to Equi-geek

Thank you. You echoed his advice but you did it in a far more polite manner. Again, thanks

I do sympathise with you. I spent years thinking I was dying. I finally had a very bad AF attack, then I knew I was dying, so much so that I rang 999. It reverted soon after arrival at hospital but it set in motion tests and treatment. Today with treatment I only get occasional episodes which are not too severe. If I could write a letter to my younger self, I’d say

1) get to the doctor, start the process and get properly assessed and treated.

2) If you do have AF then you have to stop fighting against it, learn to live with it and keep calm. My episodes are much easier to handle now. My Mantra is “it’s not life threatening”. And it isn’t, because I am on anti coagulates and other medication.

3) if offered anti depressants, try them. They work for me. Other options to consider are counselling or CBT.

4) Get to know your pulse. Don’t get obsessive but take your pulse several times when you feel fine so you know what’s normal for you. Both heart rate and regularity. Once you are familiar with normal then try and quantify it when you feel unwell.

We can be there for you but please, please get some medical attention soon.

My simple advice is to get this checked out,in case it is AF.

Contra21 in reply to HamishBoxer

How does 1 know of they have or could have af

Simple,an ECG will show it or even the fact that you get 100 plus beats per minute at rest.

Though of course it might not be AF,it could be even stress.

See the Dr and have it checked is the easy answer,though AF can come and go and might need a Holter worn for a few days to pick up.

Hope this helps and please keep us posted.

Best regards

i know palpitations feel horrible... trust me. My doc told me to take d ribose, L arginine, and taurine, and mag. I also started taking a low dose of lexapro. that really seems to help the intensity. I wish you well. It's not easy - especially if you are sensitive and it sounds like you are. I am. :)

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