Apparently it is Rare Disease day 28th February, a rare pancreatitis, so I kept off the pancreatitis help line, I have Schwannomatosis!

[Adlon57]

I thought Schwannomatosis NF3 might be included as a RARE disease? I am the only known person certainly in Ireland, with the condition, I have a personal specialist. Ask Guys Hospital London, they know of my existence? I have pancreatitis from September 2018, but an usual type, as I have epilepsy Juvenile Myoclonic Epilepsy since the age of 14 [1970] same start date of my Schwannomatosis, a schwannoma appeared on my left forearm! I became a casual social beer drinker from a young age but with the various epilepsy etc medications, eventually caused the pancreatitis, ironically I had given up drinking in 2014, I vomited a piece of my pancreas in 2018, but after that ABSOLUTELY no pain or after affects to this day, thus the reason to keep off the Pancreatitis help line. I just decided to bring to the notice of people that it is "Rare Disease Day" AND OTHERS! Thus I mentioned my Schwannomatosis NF3 and how RARE that condition is!