Hiya everyone.
8 years ago today I came home from hospital after a year & 22 days stay.. If you donāt already know I had a massive brain haemorrhage due to an AVM in my brain stem.. it absolutely changed my life.. respect goes out to all the NHS staff for saving my life and rehabilitating me.. I wouldnāt be where I am today if it wasnāt for my mam, my sister and both my nieces and my great niece Paisley ā¤ļø
Congrats on your anniversary Wazza, a great achievement!
Couldn't agree more. I don't recall the first few weeks but have only good memories of the rest of my stay in our great Salford Royal. Great admiration for staff, especially my brilliant, smiley surgeon ......and my family have been amazing throughout the past 9 years.
Keep celebrating your survival Wazza and all those who've been the extra mile along with you. x
So pleased your home having had rehabilitation and good support from the nhs. Follow up services must be great in England.
They are non existent in Scotland, basically they donāt communicate with one another. Itās a post code lottery. Its not our fault weāre stuck where we are. 38years ago we had to live within the telephone exchange, to do on call as was the days in practice/ nhs.
15 months since our son who was also a nhs person, had an accident leaving him with a server brain injury.
Which could have been so prevent, if a Dr in question would have refused to change medication she put him on. Our son was( itās still there ) an intelligent young man. Likely much more intelligent than the Dr who obviously didnāt seek advice from her more experienced colleagues.
As a family we have no support and be brutally honest feel abandoned.
They hide behind Covid.
Yeah so many professionals in social services and the NHS are using covid19 as an excuse to do nothing and not respond....
Congrats! What an achievement! I had an AVM rupture in 2018 and as you mention, it was touch and go for a few weeks! Although only in hospital for 5 weeks (I would have lost my mind any longer, although not due to the staff on the whole)! The hard work continues with rehab as Iāve found out. My journey has been good although, as another person commented, not due to any follow up, but my own determination! I wish you all the best. Stay strong.
Hiya Life-Goes-On-2021
Where in your brain was the AVM? Mine was in brain stem, I went to Sheffield hospital for radio surgery & was given the all clear/AVM was gone in 2018.. best news ever š
Please decipher your acronym AVM
Arteriovenous malformation = AVM
Hi Wazza84. My AVM was in the right cerebellum so I have ongoing problems with nausea and balance, but have relearn to walk, etc. The right side is a bit wayward, particularly when tired, but all things considered .....I had gammaknife surgery also in 2019 at Sheffield, but not yet had the all clear. At the 2 year mark my consultant has decided to leave it another year before probably repeating. A bit of a blow as I really want clarity, but he canāt change the biology. Iām a pretty positive person so after a few days moping I picked myself up. Thereās lots I can do, so just focus on that!
I was due my gammaknife results in 2015 but was told off my neurosurgeon it could take longer and he could arrange an angiogram to see how things were but it was possible the AVM could still be present or I could wait longer before I had an angiogram and the AVM could shrink more.. any way I waited til December 2017 to have the angiogram and was given an all clear February 2018.. best news I ever had and worth the wait š
I have a cerebellar AVM too. But mine in unruptured and untreated. I get monitored by MRI every couple of years. But the docs don't seem at all confident about ability to treat it. That's fine though, I have accepted it as my conclusion.
Well done wazza, also shows great determination on your part, in your recovery as well as those that helped, may you go from strength to strength love Alice xx
Concerned about nursing home care
My daughter is coming home
Update, just home after craniotomy 
Hard to know I have a brain injury
Another day, same old story 
