A day to remember. : Hiya All Today marks 9 years... - Headway

Headway

10,863 members13,088 posts

A day to remember.

Wazza84 profile image
17 Replies

Hiya All

Today marks 9 years since I had a massive brain haemorrhage due to an AVM in my brain stem.. 9 years since my life changed forever... 1 year and 22 days in hospital (4 month Salford Royal & 8 month Trafford general) .. I don’t remember the night it happened, I don’t remember a lot of things that happened in my life, I do remember people I’ve encountered in my life but situations and experiences I don’t remember, it’s a very strange thing to look at a photo/video I’m in and have no recollection of the time.. my motability is poor (balance problems,right sided weakness) and my short term memory is shocking, speech problems... anyway I’m not complaining because I’m alive, I’m here & I’m a survivor 😁

And as always a big thanks to the #NHS for saving me and thanks to my Mam, my Sister & my Nieces for being by my side through it all ❤️

Written by
Wazza84 profile image
Wazza84
To view profiles and participate in discussions please or .
17 Replies
Guppygould profile image
Guppygould

Fellow 9 year survivor! My 9 year anniversary (if you want to call it that?) was last week too.

Blossoms2 profile image
Blossoms2

❤️

cat3 profile image
cat3

9 years for me too Wazza. And we've much more in common such as Salford Royal and same long-term effects .........balance and word recall by far my worst.

I think Headway is the one place we can be who we really are !

Keep on keeping on m'love .... 🥴 Cat x

Wazza84 profile image
Wazza84 in reply tocat3

9 years in the blink of an eye Cat... 😳

cat3 profile image
cat3 in reply toWazza84

I know 😏... I suppose the short term memory is like an automatic 'delete' for each day that passes !

Take care Wazza.. x

bbharry profile image
bbharry

Bless you Wazza you warrior! This year will be my 20th anniversary of my car accident, go so bloomin quick! Give yourself a high 5 from me! 👋🏻💪🏻💕

Wazza84 profile image
Wazza84 in reply tobbharry

😂 high five ✋🏻

bbharry profile image
bbharry in reply toWazza84

😂😍

Alibongo60 profile image
Alibongo60

Congratulations wazza, your message gives everyone hope, I too was treated at Salford and owe them my life, like you I have similar problems, but will take them over the alternative, keep going lad and send you lots of love Alice xx

Wazza84 profile image
Wazza84 in reply toAlibongo60

Thanks Alibongo, such a nice message 😁 when was you in Salford? I was/am under Mr Holland neurosurgeon x

Alibongo60 profile image
Alibongo60 in reply toWazza84

Hi wazza, I am under mr holsgrove, neurosurgeon and mr Williams is Neuroradiologist, my first op was in 2012, in 2017 when aneurysm ruptured and I had a bleed, spent nearly three weeks in high dependency, I surprised them all to recover with very little problems, then couple years ago, I started having mini strokes and found aneurysm had grown and was pressing on brain stem. Spent week in Majorcan hospital, that was a nightmare, thank god for our nhs, and was due on returning home to try have more coils fitted, but when I went to surgery, a blood clot had blocked off aneurysm, scans since it is still in place and aneurysm has shrunk. It’s very unpredictable and they don’t know how long I have, but I’ll take this for now, have problems with balance, memory, and varying degrees of head pain, haven’t been able to work since, but with COVID that isn’t bad thing, worked all my life, brought up three children single handed, so it’s time to take things easier, just wish I could do more. Lots of luck for you love Alice xx

Wazza84 profile image
Wazza84 in reply toAlibongo60

I’m sorry you’re going through that but you have such a positive vibe and you look at all the positive things you’ve achieved.. thanks and all the best for you too x

AlmaMatters profile image
AlmaMatters

Congrats Wazza on 9 years - that is an achievement in itself as we know! I’m nearly 11 years (in June) and your story sounds quite similar to mine. I know how hard it can be, give yourself a big pat on the back you’re a trooper!

Wazza84 profile image
Wazza84 in reply toAlmaMatters

Hiya AlmaMatters

I just had a quick read of your story & yea we have a similar story to tell.

I’d never even heard of an AVM until my bleed 🙄 my AVM completely changed my life the day it burst..

did you have an AVM that burst or was it removed?

AlmaMatters profile image
AlmaMatters

Hi Wazza I hadn’t heard of it either until I was v abruptly diagnosed with it by an awful ENT surgeon! Mine was removed via craniotomy but during that surgery it bled very badly (I lost 14 pints of blood). Changed my life in just about every way too. It is a bizarre situation to find yourself in isn’t it. x

Wazza84 profile image
Wazza84 in reply toAlmaMatters

It is bizarre.. one day I was on an Easter break from work next day I was in hospital for a year 😳

Good on you Wazza, your ninth anniversary is definitely worth celebrating with your loving family. The fact that you survived is amazing. Hope you enjoy many more milestones.

Not what you're looking for?

You may also like...

A Question...?

Hi all, Im a little puzzled by some thing and wondered if anyone here could help. As said in my...
MXman profile image

Kind of at a loss as to what to do

I’m not quite sure what is going on. My experience of those in this group is that you are all...
sca2013 profile image

how to cope?

Hello, looking for some support… I’m feeling so much emotional pain and sadness. Firstly, coping...
Dann2 profile image

do you remember receiving your injury

do you remember the incident which caused your brain injury? if so does it haunt you? I have no...

filled with sadness and frustration

Taking a medication called roaccutane 20years ago has ruined my life. It has damaged my brain and...
Dann2 profile image

Moderation team

headwayuk profile image
headwayukPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.