Morning lovely people.after the "dol" situation that totally threw me as didn't have a clue,it is in place with the proviso that nothing happens without my knowledge.I have put my point over about lack of communication very calmly but forcefully. As a result staff have conceded that I personally have been greatly affected and have promised to do all they can moving forward.they did say however( and would have to agree) prior to last week or so there had been little input I could of had regarding son even under normal circumstances.doctor rang me y/ day to say/ ask if he could have covid vaccine.nurse rang last night to say they are going to get someone to ring with a view to video contact.she told me what to expect regarding his appearance etc she said when she told him she was going off to phone me he raised his hand.there is no doubt his injury is very bad.I can't think about other stuff right now,I'm up and down but I have to " pick my battles". I think I've won one of them this week,when I see him I will let him know,will tell him he needs to keep fighting too...
Thanks for advice/info: Morning lovely people.after... - Headway
Thanks for advice/info
Good morning D, glad you have got DOLS situation fully explained and you are happy with your understanding of it. Our son also has one in place and as you everything is discussed with me prior to anything taking place.
So pleased the hospital has acknowledged how this trauma has/is affecting you and is seeing how they can provide support. Once you have managed that first facetime call with your son you will have got over another hurdle. I am not going to pretend it is going to be easy and you will be awash with all sorts of emotions. I tried my best to reassure, encourage, tell him how well he is doing and most of all tell him although you can’t visit yet you are thinking of him all the time and love him very much. I hope you can then arrange with staff regular calls as I am sure both you and your son will benefit greatly from them. Our son on many occasions does not respond with actual talking more groaning, moaning type sounds so try not let that upset you.
Great news about his COVID jab, our son had his first in January and is getting his second on Monday - he had no problems at all after his first so 🤞🏽your son is the same.
Very best wishes from a mam who understands. Nanapal.x
Bless you n for your support/advice,I don't think seeing him can be any worse than hearing the sound of throat tube on wed night,they have told me what to expect just waiting now for someone to ring me to set it up.and thanks for keeping in touch,you and I very similar situations big hugs to allxxx
Oh good luck with video call I saw mine on video this week after 3 weeks of not seeing him, I love seeing him, it's like a relief wave ,see him and just relax to the point of sleep, lol enjoy x
Hiya thanks,glad you've had contact.I'm not going to lie I'm dreading only because I'm scared to upset my boy.something was supposed to happen y/day but nothing.2morrow another day.so will be on the phone trying to again push for contact,support,consideration for my situation.these people must be held to task for the pain and distress they are causing.I've got to step up my game and stop letting people disregard our situation
D, I hope you'll come back for a 'debrief' after what's sure to be a heart-rending video call with your son - but which is so vital for both of you.
I feel for you m'love.. Cat x
Really pleased for you. You are right about picking your battle's, you have done well x