Another update about Barry - He has been on one of the neuro wards and although they have taken good care of him on this ward our aim has been to get him a place on the neuro rehab ward at the same hospital. I went to see him on Monday and found one of the HCA shining a torch in his eyes. He then said "oh look Barry mum and dad is here to see you". He tried to get up but was unable to and he was very jittery. I immediately went to see the nursing staff to see what had happened, as the day before when he was laughing and walking with the aid of an arm (just in case) and communicating really well with his mates. At first they said that he was constipated and that was causing the change in him. I said that if he had a urine infection I could see the point, but not constipation. I then asked why the HCA was shining a torch in his eyes and was informed that he was doing obs - I then asked if he was qualified to do this and why had I never seen them do this in the last 5 weeks of him being out of ITU, then the sister told me that Barry had slipped and fallen and that the HCA could not catch him in time.
We left the hospital that night very upset at seeing the deterioration in Barry. The next morning I phoned the hospital for an update and was told he is good and had eaten his breakfast and was the same as yesterday I then said I had hoped he was not the same as yesterday, as he had appeared to be going backwards and I was then informed that a place had been found for him on the neuro rehab ward.
We popped to see him last night in the new ward and he was refusing to eat and looked really scared and worried but after reassuring him and explaining that this is the ward that will really help him he agreed to have some supper.
Our hope is that now he will get the intensive rehab that he needs to give him a better quality of life and for him to regain his skills.