So I’ve just had the call from the hospital and my husband is on his way home. It’s been 11 months and I’ve got two very anxious kids waiting for his arrival. I didn’t sleep last night, a mixture of excitement and worry.
I have tried my best to explain to the kids that dad may be different but that we’ll figure it out.
He is still having trouble with sitting balance and he finds transfers extremely fatiguing, and the left side spatial neglect is very profound so I imagine the next few weeks are going to be a period of figuring things out.
I’m scared and don’t really know what to do with myself until he gets here, perhaps a cuppa and a cuddle with the dog
Take care everyone
Written by
pozza40
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Thanking of you today and wishing your family all the luck in the world! I’m not too far behind you with my partner and I too am anxious but we will find our feet! Good luck xx
Aww, that is fabulous news, really made up for you, there will be changes and challenges but you and the children will adapt. Huge prayers storming heaven for you 🙏
All the very best- I am 5 years ahead of you and I remember feeling anxious when he came out of rehab...you will work it out. Just dont forget to look after yourself please. So often it is all about the person with the brain injury - the carer needs care too!
Try to keep positive and take time for yourself maybe a hot bath when everyone is sleeping. God Bless you and your family and it will work out OK Love Liz x🙏🌹
Wow, this is exciting but nerve wracking I bet! I hope to be in the same situation soon where I know my partner will be coming home. Thinking of you, keep the faith and keep us updated. All the best to you and your family xxx
Take things one day at a time. Sometimes one moment at a time. Also take time for yourself even if it’s just to sit and watch the birds or drink a cup or tea or whatever your Zen drink is. Self care is very important.
Thank you for all your kind messages, my husband is pleased to be home but I have to say the first few days have been difficult. The children were so upset when they saw how affected their day was, even though they had had Skype calls with him, actually seeing how incapacitated he is has really shocked them.The atmosphere at home is a bit weird, they are not coming downstairs as much and they don’t know what to say him, as his responses are sometimes strange for them.
Carers have been coming in offer transfers to commode/wheelchair but he has just been sleeping practically constantly all day and night. Is this much fatigue normal ?
I know it’s early days and it’s a lot for us all to get used to,but I’m really concerned what effect this will have on everyone.
Yes sleeping even after an hour waking up is normal, you think all those months away from home, his brain working hard taking everything in and adjusting to change expect a few months of heavy fatigue, and when family, friends start to visit he will be tired after too, so make sure visitors are planned right time for you will wipe him out. You will find in few months when medical appointments become more he will be wiped out whether home or visiting nhs. You will find yourself being wiped out too its alot to take in and adjust too.
Kids will be quiet for some time, my son in only past 3wks becoming talkative Speak to their teachers at school to monitor after Easter to bring reassurance to you.
All the best and think positive and keep the strength x
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