Rockyblue 238: Feeling like my life has stopped,or... - Headway

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Rockyblue 238

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Feeling like my life has stopped,or maybe come to a standstill at the moment,been 5 months since brain surgery after a ruptured aneurysm. Cant work,drive or seem to do much, I do try but get so worn out well best word is prob exhausted after doing just a few things. I'm scared every day that it will happen again so worry for my family,esp husband and my children even though their quite grown up now, feel such a burden even though they say I'm not. And am sure my memory is getting worse rather than better,sorry for moaning guys but dont feel there's anyone to speak too,not even gp . Take care all xxx

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Rockyblue238
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Standstill at the moment..are the key words u said.Right now ur in the frustration n overwhelmed stage.All normal thoughts ur having.

Best thing i can tell ya is..be kind to urself.

Btw..ur not moaning...its part of all this..questions,worries n etc.

Sending a hug ur way..they really do help🤗

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Rockyblue238 in reply to

Thank you for replying hippolove, hugs back at ya xxxxx

cat3 profile image
cat3

Hi again Donnal. I suspect you weren't fully prepared by your doctors for life after a haemorrhage. As I regained more awareness I was frequently reminded that fatigue, poor short term memory, headaches & impaired mobility would be a big deal but, with time and management, life would improve .

Life hasn't been the same for me since 2012 and I do still get frustrated with certain issues, especially memory, but it's who I now am and I'm grateful for my survival.

I remember feeling pretty impatient for 2-3 years whilst .....determined to prove the doctors wrong. And many abilities did return to a great extent but very, very gradually and never to the desired level. But life can be good if you lower unrealistic expectations.

I like to recount the words of my neurosurgeon for folk who're feeling insecure after an acquired brain injury. He told me, six months after the SAH, that I was 'now' no more likely than anyone else to have a recurrence of the bleed and it was perfectly safe to get back to my gardening and DIY.

Five months is such early days Donnal but you can help improve memory with cognitive exercise. I still do jigsaws, crosswords and word games every day to keep my brain as fit as possible ! Even chatting here is good exercise for the brain and can help relieve feelings of isolation.

The exhaustion will improve so long as you listen to your body's needs. It's ok to test your boundaries so long as you respect them and rest when fatigue tells you to stop.

Hope to see you soon... Cat x

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Rockyblue238 in reply to cat3

Hi cat, thanks for replying, I wasnt told anything about what to expect after surgery or how it would change my life, will try to be more patient though xx take care xx

Lulu_Lollipop profile image
Lulu_Lollipop

I echo all the above. Take things easy, this is still early days. I didn't have a ruptured aneurysm, but the big operation to clip mine has left me with issues. I have since had a stroke too so issues added to. I do what I can when I can really. I go along with Cat3 with the helpful, fun and useful games. I love Wordscapes, which is little anagram puzzles for example. Take care xx

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