I've come to this community as I'm not sure where to turn to for advice.
My brother had a serious road accident in 2003 when he was 17 years old (now he is 31). At the time, I was 15. He was concussed, and when he eventually did wake up he was delirious for a few days... things he said didn't make sense, he was hallucinating. He eventually stabalised and the hospital started to focus on his physical injuries once he did. Not much was said about him being concussed and the impact the accident had on his brain (he hit his head with force against the car windscreen) . I couldn't tell you what his official diagnosis was at the time when he was concussed, I remember he had a worryingly low score on the glasgow coma scale.
Since the accident, I have noticed my brother hasn't been quite the same. Thank god he is able to talk walk and lead a fairly normal life, underneath all of that however there is anxiety, depression, short term memory loss, mood swings, hyperactivity extreme lows, relationship problems, bad repetitive habits etc, not much self awareness, lack of concentration (finds it hard to watch tv or read anything). He hasn't progressed in life because of all of these reasons and is almost like his 17 year old self in a 31 year old body.
I need to help my brother and so I have researched TBI and got him booked in to a Neuro clinic, but I'm not sure what to expect. I don't know what to tell him with how we are going to improve things, because I feel like now we are battling with a whole heap of issues on top of a brain injury - because of the fact he hasn't been reading or taking in information, he lacks any general knowledge, common sense, and creates his own rules which become a danger to other people.
I requested my brothers medical records to see if there was anything that hadn't been followed up on with regards to a potential BI, but the NHS have let me know that my brothers records are missing from his accident, which is disheartening as I have no information to work with.
I don't know what my next steps are? Should I keep trying to get a hold of the records or focus on getting new brain scans? I wondered if there were any success stories for people who have long term undiagnosed brain injuries.. is it too late to improve?
I want my brother to lead a non-dependant life and be confident and free from depression etc and all of the things that hold him back.
At the same time, I am grateful my brother is still here. I often read the posts on this forum and many of them take me back to the days when we were waiting for my brother to wake up from his coma and I remember how that felt... so I am thankful with the progress he has made so far.
I'm thinking of everyone who has been affected by BI. I wish you all well and hope you are all making great progress